Improving Perinatal Equity and Equality in Sussex: 2022-25 Plan

Report Published: 8th December, 2022

Contents

Executive Summary

Nationally, there are stark inequalities in outcomes, access, and experience of care for maternity and neonatal service user’s and the opportunities and experience of staff from minority backgrounds. NHSE/I guidance (September 2021) sets out five priority areas to address these findings and asked Local Maternity and Neonatal Systems (LMNS) to develop local plans for delivery.

This document sets out the Sussex LMNS response – identifying the key needs of our local communities and service users, and the changes we need to make to our maternity and neonatal services to better meet these over the next 3 years.

Vision and Benefits

Our vision is to deliver equitable health outcomes for all pregnant and birthing people across Sussex, and equality of experience for the maternity and neonatal staff delivering their care.

Over the next 3 years, we will improve equity for pregnant and birthing people from at-risk groups, including BAME groups, those living in the most deprived areas, and those whose young maternal age, and improve the equality of experience for maternity & neonatal staff from BAME groups. We will start with focussing on the largest groups experiencing the greatest inequities and focus on smaller geographic and population groups over time. This will enable us to develop perinatal services where outcomes, access and experience are the same for all, and a working environment where all perinatal staff are treated equally. A summary of this can be found in the plan-on-a-page in Appendix 1.

Through embedding proportionate universalism, collaboration, and co-production in our approach, we will unlock benefits for our population, our people, and our system, including:

  • Pregnant and birthing people consistently achieve health outcomes that are as good as those who currently have the best outcomes
  • Babies and infants consistently receive the best possible start in life – improving readiness to learn, educational achievement, income, and economic status over the lifetime
  • Staff teams having consistently high levels of support to flourish and feel satisfied in their work
  • Staff and service users proactively involved in co-production – to ensure services are matched to population need
  • Long-term system benefits including improved health and quality of life, reduced demand, and reduced cost to health and social care services

Local Context and Challenges

Across Sussex LMNS, there are approximately 16,500 births each year – we have a population of 1.7m people, of which 15% – 25% are women aged 16-44. Birth rates have been broadly stable since 2013 and are forecast to remain constant through to 2025, with the picture consistent across the region.

Our services are organised into three Places, aligned to Local Authority boundaries, each with a Maternity Voices Partnership (MVP). Acute services are provided by University Hospitals Sussex NHS Foundation Trust and East Sussex Healthcare NHS Trust within the LMNS, and Surrey and Sussex Healthcare NHS Trust and Maidstone and Tunbridge Wells NHS Trust in the north of the patch. Additionally, Sussex Partnership NHS Foundation Trust provides specialist Perinatal Mental Health services and Sussex Community NHS Foundation Trust provides health visiting services. Local Authority partners provide health visiting and public health, including early years.

We strive to deliver high-quality care for all, but we know we can do better. Key challenges include:

  1. Complex system, with diverse population cohorts with differing needs – local populations vary substantially in terms of deprivation, rurality, ethnicity, and age distribution (factors associated with significantly worse outcomes and access to care) and targeted interventions are needed to meet their needs.
  2. Increased risk of poor maternal and foetal outcomes in some underserved groups – Sussex appears in line with national trends showing poorer outcomes for those from BAME backgrounds, increased deprivation, low maternal age, those living with disabilities, rural and coastal communities.
  3. Variation in risk factors, healthy behaviours and health and care needs between groups – modifiable maternal risk factors (e.g., maternal smoking and obesity) and healthy behaviours vary significantly between service user cohorts; we need to target groups that have disproportionately higher risk.
  4. Workforce inequalities – BAME staff in particular face multiple disadvantages including differential workforce experience and underrepresentation of minority groups at middle and senior levels; we need to provide targeted support for our maternity and neonatal BAME staff.

Delivering the Vision

Our plan starts from an in-depth understanding of the communities we serve, their needs and how our services can be adapted to better meet these.

We have focused on a subset of priority groups that experience the greatest inequities and make up a larger proportion of Sussex’s local population. We recognise this is not initially a comprehensive approach and there are several further groups that will need enhanced support (e.g., travellers, asylum seekers and refugees, older birthing people, those living with disabilities and coastal communities). Our continuous quality improvement approach will enable us to become more granular in understanding and tailoring our actions to address the specific needs of these further groups and the intersectionality between them.

Over the next 3 years we will deliver (and go beyond) the national guidance to develop more equitable services for our population:

By the end of FY 2022/23 we will: restore services inclusively (implementing the four COVID-19 actions to narrow disparities in pandemic related outcomes), implement the Long Term Plan perinatal mental health service (to capture more maternity service users), roll-out the Maternity Medicine Network pilot, use WRES data to support maternity and neonatal staff and ensure increased reporting of outcome data by ethnicity and postcode.

By the end of FY 2023/24 we will: implement Continuity of Carer (CoC) for 75% of birthing people from BAME and deprived groups, progress towards ambitious goals for the proportion of women and birthing people on smoke-free pathways, provide access to Maternal Medicine Networks across region, embed perinatal pelvic health services, roll out multidisciplinary cultural competence training at scale and embed data into BAU processes to identify and prioritise those groups with poorer health outcomes.

By the end of FY 2024/25 we will: offer CoC to all pregnant and birthing people as the default model of care, providing to at least 75% of birthing people from BAME groups and deprived areas with CoC as they take up this offer, achieve UNICEF Baby Friendly accreditation for all services, provide expanded perinatal and maternal mental health services (extending the PNMH specialist service to 24 months and including non-birthing parents and families), roll-out use of community hubs, ensure co-production is embedded within BAU and inform ongoing service development using population health management.

To deliver these objectives, Places have developed targeted interventions across six areas.

Action AreaSummary Description
Implementing and embedding Continuity of CarerTransitioning to Continuity of Carer as the default model of care for all birthing people, developing our workforce to support this and rolling out teams as a priority for underserved groups with co-produced comms
Offering personalised care, tailored to individual needUsing tailored communications and personalised care plans to offer birthing people and their family’s meaningful choice through their maternity journey and provide targeted, enhanced support to meet their needs based on shared decision-making
Supporting long-term maternal health and wellbeingWrapping a network of care around birthing people to proactively manage and support their wellbeing – through maternal medicine networks, perinatal mental health, social support and encouraging healthy behaviours
Addressing perinatal risk factorsProviding education, health promotion and targeted support during maternity to reduce risks of perinatal morbidity and mortality, and support a healthy start for all children – e.g., through preconception care, smoking cessation, and supportive infant feeding
Supporting our workforceSupporting staff to give culturally competent care, and ensuring that their skill and dedication is recognised, irrespective of their ethnic group
Data, strengthening leadership and continuing quality improvementUsing up-to-date data on outcomes by ethnicity and deprivation to continuously identify underserved populations, the effectiveness of current service provision and co-produce targeted interventions. Developing a perinatal population health management approach, and supporting digital interoperability to be in place across our services

Role of the LMNS in Delivery

For this plan to be effective it needs to be adapted and implemented at Place level. Therefore, delivery will be through Place-based Steering Groups with representatives from providers, commissioners, public health, MVPs, voluntary, community and social enterprise (VCSE) organisations and the LMNS. The LMNS will support delivery in three main ways:

  1. Co-designing services with users and families: leading ongoing development and engagement with this plan and ensuring the key ingredients for meaningful co-production are in place, including:
    • a shared understanding of what co-production is and how/ when it should be used
    • a sustainable model for resourcing and funding co-production
    • the right people and appropriate representation are involved in co-production
    • using data to identify improvement opportunities for co-production
    • sharing of best practice across the LMNS
  2. Supporting organisations to deliver local change: facilitating collaboration and agreeing roles and responsibilities of partner organisations, and putting in place delivery structures that ensure:
    • engagement and cross-organisational collaboration
    • detailed implementation planning
    • data flows to support evidence-based decision making
    • robust governance
    • capacity and capability to deliver
  3. Leading system-wide collaboration and transformation:
    • enabling continuous clinical quality improvement by developing relationships and collaboration between partners, granular up-to-date performance data and system-level structures to review and identify target improvement opportunities
    • monitoring outcomes and progress against the plan, breaking down outcome data by ethnicity, post code and other risk factors and tracking delivery of key process metrics
    • managing interdependencies with other ICS workstreams (workforce; digital; estates; finance; Population Health Management; Prevention and Inequalities; Turning the Tide) by proactively reporting and engaging with them
    • championing more granular development of local analysis and co-production recognising the wider determinants of health and impact of community assets on health outcomes

Introduction

Vision, Aims, and Values Embedded in This Plan

Our vision is to deliver equity of health outcomes for all pregnant and birthing people across Sussex, and equality of experience for maternity and neonatal staff delivering their care, so pregnant and birthing people in Sussex achieve health outcomes that are as good as the groups with the best health outcomes in our population.

We will achieve this by empowering all birthing people in Sussex to make informed choices about their care – supported by collaborative relationships with healthcare staff, access to care in the community, and services which are co-produced to meet their needs.

Through this work, in future we will not only ask if our services are safe, compassionate, and accessible overall, but if they are equitably safe, compassionate, and accessible for everyone, measuring our progress and success. To do this we will need to:

  • Improve equity for pregnant and birthing people from BAME groups, those living in the most deprived areas, and those whose young maternal age makes them at-risk
  • Improve the equality of experience for maternity and neonatal staff from BAME groups

Our additional aims for where we want to be at the end of each of the three years from 2022 to 2025 are expressed as System-wide goals in Section 3.

Our maternity services transformation will be based on three fundamental principles:

  • Proportionate universalism – deliver universal service improvements for all, whilst targeting effort and investment in a way that reflects the needs of the most disadvantaged groups
  • Collaboration – work together with the widest possible range of partner organisations at Place-level, because maternity and neonatal services cannot alone improve perinatal equity and equality
  • Co-production – continuously involve service users and staff in planning and design, ensuring that a representative range of voices and experiences informs how we identify and deliver improvements. (To demonstrate our positive track record in successful co-production, case study examples feature throughout this document in pale blue boxes.)

This plan is the delivery mechanism for the perinatal equity aspects of Sussex Health and Care Partnership’s (SHCP) Core20PLUS5 approach, and a key mechanism for meeting the ambitions set out in Sussex 2025: Our vision for a healthier future and the Sussex Strategic Health Inequality Framework. It is a vital step in delivering fairer and more equitable care across Sussex.

Local Context

Sussex has a population of 1.7 million people, of which 15% – 25% are women aged between 16 – 44 years of age. Birth rates have been broadly stable since 2013 and are forecast to remain constant through to 2025, with the picture consistent across the region.

Sussex LMNS brings together the maternity service providers, perinatal mental health service providers, commissioners for health and public health and local authority colleagues with maternity and neonatal service user representatives, known as Maternity Voices Partnerships (MVPs).

Together the maternity and neonatal service providers – University Hospitals Sussex NHS Foundation Trust (UHSx), East Sussex Healthcare NHS Trust (ESHT), and Surrey and Sussex Healthcare NHS Trust (SASH) – provide care for approximately 16,500 Sussex births each year, delivering maternity services within three acute providers and across seven sites. Maidstone and Tunbridge Wells NHS Trust (MTW) also provide some maternity services in East Sussex. Additionally, Sussex Community NHS Foundation Trust (SCFT) and ESHT provide health visiting services, while Sussex Partnership NHS Foundation Trust (SPFT) provides specialist perinatal mental health services across the system. The Sussex LMNS works collaboratively with the Sussex Mental Health Programme on perinatal mental health and wellbeing.

There are significant pockets of multiple deprivation across Sussex. These are shown in darker purple below, and include areas such as Rother in the east, parts of Hastings, Wealden and Brighton and Hove in the south, and Arun (particularly Littlehampton and Bognor Regis) in the west. In the north, Crawley has the highest number of deprived areas.

There are three Local Authorities in Sussex – Brighton & Hove City Council, East Sussex County Council and West Sussex County Council – who are responsible for commissioning health visiting, prevention services and a range of other services that impact on the wider social determinants of health and wellbeing.

The perinatal population of Sussex access maternity and neonatal services from providers in three Local Maternity and Neonatal Systems – Sussex, Surrey Heartlands and Kent & Medway LMNS – and two Neonatal Operational Delivery Networks – Hampshire, and Kent, Surrey, Sussex – making it one of the most complex in the country.

Case for Change

We are committed to delivering a safe, high-quality, and personalised maternity journey for all. In our 2019 LMNS Plan, we identified health inequalities and unwarranted variation as a key challenge and have been working to improve and address this.

New PCSP cover

New PCSP cover

Co-producing Personalised Care and Support Plans (PCSPs)

Tasked with producing a new PCSP for Sussex, service users and staff came together to co-produce a booklet. A strategic service user representative led this engagement, listening to a broad range of user views via an online survey and conducting wide staff engagement, understanding their needs and the needs of the people they care for, and encouraging wide PCSP use. Staff included specialist midwives and representatives from perinatal mental health, young persons’ continuity of care, infant feeding support and health visiting. The hard copy produced reflects service users’ and clinicians’ needs, increases confidence in the utility of PCSPs, and has informed the design of a digital version.

Whilst we have made significant progress, we know there are still differences in how birthing people from different populations access and experience maternity and neonatal care and the outcomes associated with this. For Sussex, the key challenges are:

  1. Large and diverse population with differing needs
  2. Increased risk of poor maternal and foetal outcomes in some underserved groups
  3. Variation in risk factors, healthy behaviours and health and care needs between cohorts
  4. Workforce inequalities, including underrepresentation of minority groups at senior levels and differential workforce experience

Large and Diverse Population with Differing Needs

Sussex has one of the largest geographical footprints in the country with a diverse population, which presents challenges to delivering a standardised, high-quality service and reducing inequities.

Whilst our overall Sussex population is predominantly white (93.7%) with large areas of relative affluence, we have significant pockets of need. Our local communities vary substantially in terms of deprivation, rurality, ethnicity, and age distribution – these factors can be associated with significantly worse maternal and foetal outcomes and poor access to care.

  • Ethnic Minority groups (incl. Traveller and refugee groups): 1.5-2 times higher infant mortality rates for BAME birthing people than for White birthing people, 2-4 times increased risk of maternal death, increased risk of miscarriage and poor antenatal care. During COVID, women and birthing people from an Asian background were four times more likely to be admitted to hospital.
  • Deprivation: babies born to women and birthing people in the 20% most deprived areas have a 30% increased risk of neonatal mortality, a higher likelihood of congenital abnormalities, increased risk of low and very low birthweight, and poor access to care with late booking. There is a 2 times higher risk of maternal deaths for those living in the 20% most deprived areas.
  • Young birthing people: 60% higher infant mortality rate for babies born to teenagers, a 20% higher risk of low birthweight babies and a 30% higher risk of perinatal mental health issues. Babies born to teenagers experience poorer long-term socioeconomic outcomes (for example, by age 30, 22% are more likely to be living in poverty).
  • Older birthing people: greater risk of maternal morbidity incl. gestational diabetes and eclampsia, higher risk of miscarriage, growth restriction and preterm birth, reduced choice of birthplace offered and greater rate of interventions
  • Those living with disabilities: poorer maternal wellbeing and pregnancy outcomes, including pre-eclampsia, pre-term birth, low birth weight and 2 times higher risk of stillbirth or infant death
  • Rural populations: poor access to care including emergency and routine specialist services, reduced choice (especially birthplace), increased risk of mental illness
  • Coastal communities: poorer health outcomes, including higher perinatal mortality and perinatal mental health disorders than in non-coastal Sussex communities, and increased prevalence of maternal and neonatal risk factors

We need to reduce these inequalities for our populations – this will require us to work differently in terms of how we use resources, how we assess the impact of the decisions we make and how we look at new ways in which everyone can have equitable access to appropriate services.

Some groups may require more intensive support and additional help to access services – this plan sets out how we will tailor our services to target the needs of our local populations and offer a personalised maternity journey that wraps around the individual and their family.

Increased Risk of Poor Maternal and Foetal Outcomes in Some Underserved Groups

Nationally, the 2021 MBRRACE-UK and National Child Mortality Database (NCMD) reports show the stark differences in outcomes and experience for birthing people from Black, Asian and Mixed ethnic groups, and those that are socioeconomically deprived. The reports show that while neonatal mortality rates are improving, they aren’t improving equally for women and birthing people of different ethnicities, or women and birthing people from affluent and deprived areas. Also, there is national variation in the quality of care for neonates.

We believe this picture to be consistent locally. Although we do not consistently record our outcomes by ethnicity, age, or deprivation, where data is present it is in line with the national picture. Going forwards, capturing, and reviewing outcomes by cohort will be key to tailoring our maternity and neonatal services and taking a population health approach for our perinatal population Sussex.

Delivering improvements in perinatal and maternal mortality and personalised maternity services will require engagement and outreach to these seldom heard groups, to build trust for effective co-production and understanding of their experience. We will work to co-design services to target the specific needs of these populations, giving all women and birthing people a greater voice in the perinatal services they use and enabling shared decision-making in their care. This collaborative relationship is essential to improving safety and quality in maternity services, including morbidity and mortality.

Cross-departmental Deep-dives Involving Service Users

At ESHT, service users and senior managers across all departments meet every six months to discuss service user feedback (incl. responses from MVP online surveys) and agree actions. This can include setting up working groups on specific issues, with progress monitored at quarterly MVP meetings so that service users can hold services to account.

Co-producing Business Plans

MVPs have supported the co-production of a business plan for peer support for black and brown pregnant birthing people with maternity and neonatal staff. This led to the commissioning of a peer support programme with The Motherhood Group.

Variation in Risk Factors, Healthy Behaviours and Health and Care Needs

Historically, Sussex has seen a high prevalence of modifiable maternal risk factors, namely maternal smoking – particularly in East Sussex – and – as identified in our 2019 LMNS Plan – obesity rates above national targets.

Maternal smoking is associated with a 47% increase in risk of stillbirth, a 27% increased risk of pre-term birth and an 82% increased risk of a low birthweight baby as well as increased risk of congenital abnormalities of the heart, limbs, and face. Women and birthing people who are overweight or obese have an increased risk of experiencing complications in pregnancy and/or labour such as gestational diabetes, thromboembolism, miscarriage, and death.

We have put in place targeted interventions to address these risk factors and promote healthy behaviours but need to tailor these further to target groups that have disproportionately higher risk. We know:

  • Maternal smoking rates, especially in early pregnancy are higher than national average for those in the most deprived 20% and for those from white backgrounds
  • Most minority BAME groups have higher rates of abstinence and lower levels of drinking compared to people from white backgrounds
  • Like smoking, women and birthing people from more deprived backgrounds are more likely to be obese at booking, with rates decreasing in line with increasing affluence.
  • Nationally, Black women and birthing people are more likely to be overweight or obese in pregnancy (66.6% compared to 49% national average, according to analysis of the 2017 Maternity Services Dataset)

There is a complex relationship between risk factors and population demographics. For example, while we know smoking rates are higher in deprived groups around Hastings and East Sussex, this high rate is driven mainly due to high maternal smoking rates in teenage and young birthing people. Building on the regional ‘Ready for Pregnancy’ and ‘Ready for Parenthood’ campaigns we will develop targeted, culturally nuanced prevention interventions, using the Making Every Contact Count approach to health promotion.

COVID risk poster co-produced with BAME service users

COVID risk poster co-produced with BAME service users

Working with BAME service users to develop targeted, sensitive communications and pathways

During COVID, Brighton and Sussex University Hospitals NHS Trust proactively reached out to pregnant women and birthing people from BAME backgrounds to co-produce a poster that raised awareness of risks to this group during the pandemic. The poster has been used widely throughout Sussex and received favourably.

The Perinatal Mental Health Network (PMHN) also worked closely with MVPs in producing its new trauma-informed care pathway. MVPs gathered service user feedback, signposted service users to appropriate help and support, and shared information with the PMHN on what would work well in a trauma-informed care approach.

Workforce Inequalities

UHSx has a maternity and neonatal team of over 1000 people (807 WTE), and ESHT has a team of 399 (331 WTE) across clinical and non-clinical roles.

The overall ethnicity profile is broadly in line with the surrounding population (85% from a white background at UHSx, 91% at ESHT). A higher portion of medical staff are from BAME backgrounds (54% white background at UHSx, 40% at ESHT), with midwifery and nursing and support staff more likely to be from white backgrounds (91% – 93% white backgrounds at UHSx and ESHT.

We know that staff from a BAME background face disadvantages – this has been shown nationally, and local data supports a similar picture in Sussex. This includes:

  • Lower representation in senior, very senior, and Board level roles. At UHSx the proportion of BAME WTE per band (clinical and non-clinical roles) consistently declines from 25.8% at Band 1 to 6.2% at Band 9. 71% – 81% of BAME employees believed that there are equal opportunities for career progression vs 86 – 89% of white employees across ESHT and UHSx, (WRES 1).
  • Lower likelihood of staff being appointed from shortlisting. Locally, white applicants are 1.62 times more likely to be appointed to senior roles at UHSx East (previously BSUH), 1.55 times more likely at UHSx West, and 1.07 times more likely at ESHT, (WRES 2).
  • Greater likelihood of staff entering the formal disciplinary process. The local picture is mixed – at UHSx West, BAME staff are 1.88 times more likely to enter formal processes, while at UHSx East, white staff are 0.19 times more likely to be subject to a formal process. There is no significant difference in rates at ESHT, (WRES 3).
  • Lower likelihood of staff accessing non-mandatory training/CPD. White staff are 1.07 times more likely to access training compared to BAME counterparts across UHSx, but the reverse is true at ESHT, (WRES 4).
  • Greater percentage of staff experiencing harassment, bullying, or abuse from staff. Across UHSx and ESHT, 15% – 16% of BAME staff reported discrimination from managers, team leader, or colleagues compared to 6-7% of white staff, (WRES 6).
  • Greater percentage of staff experiencing harassment, bullying, or abuse from patients, relatives, or the public. 29.3% of BAME staff at ESHT and 33% – 34% at UHSx reported experiencing this, vs 23.4% and 28% – 31% of white staff respectively, (WRES 5).
  • Lower percentage of staff believing there are equal opportunities for career progression or promotion Across UH Sx and ESHT 71.6% – of BAME staff report that they believe there are equal opportunities compared to 85.7% – of white staff, (WRES 7).
  • WRES 8 – A greater percentage of staff personally experiencing discrimination from their manager, team leader of colleagues – Across UHSx and ESHT 15.5% – of BAME staff report they experience discrimination from their manager, team leader, or colleagues compared to 7.1% of white staff, (WRES 8).

Listening to Staff Experience Through Multiple Channels, and Building a Grassroots Strategy

Across the LMNS there are multiple initiatives we can build on to reduce inequalities in the workforce. Staff Facebook groups such as the “Make it Happen” group act as an open forum for continuous feedback and discussion, and Equality, Diversity, and Inclusion (EDI) champions across the system build trusted relationships for focussed input into formal processes and structures.

The REAL (Recognition, Equity, Advocacy and Leadership) strategy that was devised by a midwife, who is the Race Equality Lead in UH Sussex, is leading meaningful improvement for BAME staff as well as BAME service users. The midwife and her team of REAL ambassadors and allies support BAME staff, provide educational resources, support communication between senior management and the shop floor, conduct local analysis and deliver office hours, amongst many other activities. This is building trusting relationships with BAME staff and generating an environment where staff feel more able to share their experiences and be involved in designing and delivering improvements.

Benefits of Delivering This Perinatal Equity and Equality Plan

For Our Users and Our Population

  • Safer, more personalised care delivery offered by small teams who get to know and understand their population groups’ health needs and target their services accordingly
  • Pregnant and birthing people consistently achieve health outcomes that are as good as those who currently have the best outcomes
  • Babies and infants consistently receive the best possible start in life – improving readiness to learn, educational achievement, income, and economic status over their lifetime
  • Continuity of Carer is offered to all pregnant and birthing people and provided to at least 75% of BAME birthing people and those from 20% most deprived areas through targeted and enhanced models to help reduce the risk of adverse outcomes in for these groups. Women and birthing people who receive continuity of midwife-led care are 16% less likely to lose their baby and 19% less likely to lose their baby before 24 weeks. They are also 24% less likely to experience pre-term birth

For Our Teams and Our People

  • Maternity and neonatal staff have consistently high levels of support to flourish in their work and provide the best possible care
  • Increased staff satisfaction through ability to form personal, collaborative relationships with women and birthing people and follow them through their journey
  • A workforce that is better representative of the population it serves and more able to deliver personalised, culturally sensitive care
  • Unlocking the potential of all our staff will strengthen our community and our ability to sustainably provide high-quality care

For Our System and Organisations

  • Support from perinatal services is universally available to all and additionally targeted to where it is most needed
  • Staff and service users are proactively and systematically involved in co-production across service design, improvement, and delivery – to ensure services are matched to population need
  • Long-term system benefits including improved health and quality of life, reduced demand and reduced cost to health and social care services

Planning Approach

Our plan starts from an in-depth understanding of the communities we serve, their needs and how our services can be adapted to better meet these. It builds on a detailed understanding of where we are now against the five national priorities – see Appendix 2.

We have defined an initial 3-year plan – setting out the key milestones and system-wide goals to deliver against the five national priority areas. The actions needed to deliver this are grouped into six areas comprised of nationally mandated interventions, best practice guidance and local actions. Each Place has co-designed a targeted local plan, bringing together providers, commissioners, service users, the LMNS, public health and local authorities.

To have the largest impact we are starting with the largest population groups (those from a BAME background, those from the 20% most deprived areas, young birthing people), whilst we further develop our granular understanding of local populations’ needs at district/ neighbourhood levels.

Our approach builds on the work to date in three keyways:

  1. By focusing on common population groups in each Place, we can identify and understand common needs which need to be addressed regardless of location and level of deprivation
  2. By developing local analyses, we will be able to increasingly understand the needs of that community in the context of their local environment and the wider social determinants of their health – preventing us viewing population groups in a fixed way due to single or limited characteristics
  3. We are developing our capacity to understand intersectionality within our population

We recognise this approach is not comprehensive, and there are several groups that will need enhanced support and targeted services to ensure equity of outcomes. This includes those living with disabilities, those from refugee and migrant backgrounds, those from the Traveller community and those with other protected characteristics (e.g., religion, sexual orientation, marital status).

We commit to continuing this work. By further developing our understanding of local communities we will deep dive into the needs of these groups, engaging service users to co-produce and further tailor our actions to meet these. We will take a continuous improvement approach to ensure our services are equitable and designed around the needs of the people and families we serve. Further detail of the metrics to be measured can be found in Appendix 3.

Open Lines of Discussion Between Service Users and Senior Staff to Make Improvements

ESHT has established clear routes for service users to initiate additional discussion and improvement. MVPs are able to directly refer service users who had a negative experience to the Head of Midwifery and Director of Midwifery to raise and address the issue. This can lead to general reflection on practice and improvement initiatives, and it can also lead to targeted discussions with relevant teams and individuals. It also enables service users who have had a negative experience to be signposted to appropriate support and debrief services.

System-wide Goals

We have an ambitious plan to reduce perinatal inequalities across Sussex over the next 3 years. As an LMNS we have a strong foundation in system working and collaboration, which will enable us to go further and faster than the national priorities.

The table below sets out our system-wide goals for delivering against all five national priorities over the next three years. Goals that go beyond the September 2021 NHSEI guidance are marked with a green circle.

National Priority AreaSystem Wide Goals
2022-232023-242024-25
1. Restore NHS services inclusively Four COVID-19 actions to narrow disparities in pandemic-related outcomesCOVID-19 actions continue to be targeted at at-risk BAME groups and on 10% most deprived populations

Implement flagging for 20% most deprived post codes
Scope of relevant COVID-19 actions is expanded to focus also on 20% most deprived populationsFurther expand and embed support for at-risk groups as BAU
2. Mitigate against digital exclusionPersonalised Care and Support Plans (PCSPs) are available in both hard copy & digital formats, and in top 5 languagesContinuity of carer teams embed meaningful use of PCSPs in priority target groups - with translation into further languagesCo-produced review and design of tailored PCSPs is undertaken with under-represented demographic groups
3. Ensure datasets are complete and timelyNational MSDS targets are exceeded re. valid postcode for 95% of birthing people booking in and valid ethnic category for 80%Systematic use of data is embedded into BAU processes to identify and prioritise those groups with poorer health outcomes.

Digital interoperability is in place across LMNS services
Individual teams are familiar with, own and act on their services’ datasets broken down by demographic group
4a. Understand your population and co-produce interventionsRobust arrangements are in place for annual review of perinatal equity and equality across Place populationsA population health management approach to ongoing service development is embedded within BAU
4a. continuedCommunity asset mapping is used proactively to identify channels for co-production with under-represented groups

An LMNS-wide co-production plan is signed off
Maternity Voice Partnerships better reflect the ethnic diversity of local populationsProactive co-production with birthing people, families and staff is embedded within BAU processes for understanding population needs, service design and commissioning
4b. Action on maternal mortality, morbidity, and experience Addressing long-term maternal health and wellbeingMaternal Medicine Network sub-hub is piloted with clearly documented referral routes and tailored pathways for disadvantaged groupsBy Mar 2024, every birthing people – with a focus on those from disadvantaged groups – with complex medical problems has access to Maternal Medicine Network-provided specialist advice and careMaternal Medicine Network offers resources and guidance to clinicians Sussex-wide who are caring for birthing people with complex medical problems
4b. continuedWell-established connections between services mean that pregnancy is not a factor influencing delays in treatment for those with cancer
4b. continuedAll perinatal mental health services robustly capture access data by ethnicity and deprivation

Specialist perinatal and maternal mental health services expand in line with the NHS Long Term Plan
Ethnicity and deprivation data is used to address the mental health needs of underserved communitiesThe PNMH specialist service extends to 24 months and includes non-birthing parents and families in line with the NHS Long Term Plan
4b. continuedClear links between maternity services and primary care support referral pathways into the NHS Diabetes Prevention Programme for those with previous diagnosis of gestational diabetes – esp. from at-risk groupsA range of pathways are in place for referral into NHS Diabetes Prevention Programme, including from weight management services
4b. continuedData on number of birthing people with complex social factors presenting for antenatal care (attendance at appointments) is routinely recordedData on antenatal appointment attendance by birthing people with complex social factors informs tailored antenatal service developmentAntenatal outreach services in accessible settings cater specifically to peer groups of at-risk young birthing people <20
4b. continuedEarly models of perinatal pelvic health services are implemented, targeted at underserved groupsPerinatal pelvic health services are embedded across the systemPerinatal pelvic health services routinely examine variation in outcomes by ethnicity, and co-produce targeted interventions

Improved prevention and identification of mild-moderate pelvic floor dysfunction and timely access to perinatal pelvic health services, including targeting under-served groups
4c. Action on perinatal mortality and morbidity Addressing foetal and infant health and wellbeingContinuity of Carer (CoC) teams are re-started/developed in pilot geographical areas with large populations of BAME and most deprived groups experiencing complex social factorsLearning from pilots is used to roll out the CoC model more widely – including for 50% of birthing people from BAME groups and deprived areas (interim system target)By 2024, CoC is offered as the default model of care to all pregnant and birthing people

By 2024, at least 75% of birthing people from BAME groups and deprived areas receive CoC

CoC teams are familiar with and act on their own service data, broken down by demographic groups

Services are working towards inclusive recruitment that supports CoC teams to be better reflective of underserved areas
4c. continuedAll maternity services working towards UNICEF Baby Friendly accreditationContinuity of Carer teams provide personalised infant feeding support in BAME and deprived groupsAll maternity services achieve UNICEF Baby Friendly accreditation by end of 2024
4c. continuedSmoke-free pregnancy pathway (effective identification, staff training, specialist advice, focused treatments) is implementedPlaces are progressed towards 94% smoke-free pregnancies to achieve the national ambition of smoking at time of delivery of 6% or less
4c. continuedCo-produced LMNS-wide infant feeding strategy is agreed and implemented
4d. Support for maternity and neonatal staffPersonal experiences of staff's positive and negative working experiences are shared, including wider cultural issues, via Trust focus groups, identifying key themes and establishing actions to address negative experiencesIncreased intake of maternity and neonatal staff in SHCP Talent Management and Leadership programmesThere is a significant narrowing of the gap in WRES indicators 1-8 between ethnic minority and white maternity and neonatal staff, compared to 2022-23
4d. continuedWRES data by ethnicity is routinely examined for midwives and nurses working in maternity and neonatal services to better understand their experience and set improvement targetsWRES data by ethnicity is broken down into more granular groups of maternity and neonatal staff to better understand their experience
4d. continuedEthnicity is recorded and reviewed for all serious incidents and perinatal mortality reviews relating to patient careMultidisciplinary cultural competence training is rolled out at scale, boosting staff confidence to discuss impact of birthing peoples' cultureInvestigations and reviews routinely consider whether the impact of culture on a birthing peoples' needs was discussed during their care
4e. Put in place enablers of high-quality careMaternity services running out of community hubs are piloted in areas with underserved demographic groupsMaternity services running out of an expanded set of community hubs and are provided holistically alongside other health and social servicesUse of community hubs supports continuity of care teams to create safe spaces for birthing people that are integrated with other family health and wellbeing services
5. Strengthen leadership and accountabilityAccountability for local implementation of this action plan is embedded into Place-based governance structures

Clear links established between this action plan and system-wide population health management strategy
Clinical quality improvement discussions that regularly review the need for additional targeted interventions are embedded into BAU rhythms facilitated by the LMNSLeadership of the perinatal equity and equality agenda is dispersed amongst a wide range of local statutory and voluntary agencies, together with service user representatives

Sussex-wide Action Areas

To deliver our vision and the system-wide goals set out above, we are acting across six areas. These action areas group the wide range of interventions sitting underneath the national priorities. The six areas and illustrative summaries of relevant interventions are given below.

Action AreaSummary DescriptionRelevant National Priorities
Implementing and embedding Continuity of CarerTransitioning to Continuity of Carer as the default model of care for all birthing people, developing our workforce to support this and rolling out teams as a priority for underserved groups with co-produced comms4c
Offering personalised care, tailored to individual needUsing tailored communications and personalised care plans to offer birthing people and their families meaningful choice through their maternity journey and provide targeted, enhanced support to meet their needs based on shared decision-making1, 2, 4b, 4e
Supporting long-term maternal health and wellbeingWrapping a network of care around birthing people to proactively manage and support their wellbeing - through maternal medicine networks, perinatal mental health, social support and encouraging healthy behaviours4a, 4b, 4e
Addressing perinatal risk factorsProviding education, health promotion and targeted support during maternity to reduce risks of perinatal morbidity and mortality, and support a healthy start for all children - e.g., through preconception care, smoking cessation, and supportive infant feeding4c
Supporting our workforceSupporting staff to give culturally competent care, and ensuring that their skill and dedication is recognised, irrespective of their ethnic group4a, 4c, 4d
Data, strengthening leadership and continuing quality improvementUsing up-to-date data on outcomes by ethnicity and deprivation to continuously identify underserved populations, the effectiveness of current service provision and co-produce targeted interventions.

Deliver the Data Quality Improvement Plan for oversight of the twenty-three national perinatal equity indicators. Developing a perinatal population health management approach, and supporting digital interoperability to be in place across our services
1, 2, 3, 4b, 5

Place-based Plans

East Sussex

Birthing Population Context

During 2020/21, there were 3,348 maternity bookings and 2,853 births that took place at ESHT. In terms of reproductive-aged women more broadly, in 2020 there were an estimated 81,607 women aged between 16 and 44 living in East Sussex, comprising 14.6% of the overall county population. Supporting this estimate, 15.9% of those registered with East Sussex GP practices are women aged 15-44 years old.

A relatively small proportion (9%) of birthing people at ESHT came from BAME backgrounds in 2020-21. These service users are clustered in Eastbourne (37% of service user residents), with other significant pockets in St Leonards (19%), Hastings (15%) and Bexhill (13%). The largest identifiable ethnic group was Asian/Asian British – 4% of all perinatal service users – with the majority living in Eastbourne. Over half of all (230) interpretation requests maternity services in 2019-20 were for Arabic – potentially indicating another significant ethnic group. One of the most striking perinatal inequalities for the BAME group across East Sussex relates to a disproportionate number of caesarean sections: 41% of births to BAME birthing people at ESHT were by caesarean section in 2020-21, compared to an approximate 25% national average across all demographic groups.

The most deprived population groups in East Sussex are clustered around Hastings, which has seven wards within the most deprived decile nationally. In addition, 40% of GP patients in Hastings & St Leonards PCN live within the most deprived quintile nationally. The proportion of booking appointments at ESHT to women and birthing people living in the most deprived decile was 13.7% in 2020-21 – slightly higher than national average (12.7%) and considerably higher than the Sussex average (5.7%). Considering other disadvantaged groups – who can intersect with groups living deprivation – 10% of those birthing at ESHT were recorded as having complex social factors in March 2021. In relation to young birthing people specifically, between August 2020 & July 2021 an average of 10.4% of women and birthing people on the specialist perinatal mental health services caseload within East Sussex CCG were aged between 16 and 20. This is far higher than the overall proportion of service users this age, and points to the discrepancy in outcomes for this group.

Provider Context

Most maternity and neonatal services in East Sussex are provided by ESHT – an integrated acute and community provider. ESHT operates two maternity sites – at Hastings Conquest Hospital and Eastbourne District General Hospital. This Place-based plan is focused on ESHT’s role as lead provider. Maidstone and Tunbridge Wells NHS Trust (MTW) also provide some maternity services in East Sussex. Whilst MTW comes under the Kent and Medway LMNS, Sussex LMNS works collaboratively with MTW on reporting and monitoring. Sussex Partnership NHS Foundation Trust provides perinatal mental health services in the area.

In relation to workforce, WRES data for 2020 indicates that 16% of the ESHT maternity workforce identified as BAME – this is significantly higher than approximately 6% of the overall population. An ESHT staff survey in 2019/2020 – with results broken down for the gynaecology and obstetrics department – found that only 76% of BAME employees believed that the Trust provides equal opportunities for career progression or promotion, compared to 88% of non-BAME employees. Combined with similarly disproportionate responses for other WRES indicators – such as experiences of harassment – these results characterise a consistently poorer workplace experience for BAME employees compared to their non-BAME counterparts.

Priority Demographic Groups

To focus on interventions which are most likely to have the biggest impact on reducing perinatal health inequalities, the East Sussex perinatal equity steering group has identified three priority demographic groups for targeted action – based on the extent of health inequalities they experience, the relative size of the group compared to other groups, and national priorities.

This identification accounts for why these three groups were the focus of the birthing population context summarised in the section above. The table below sets out the needs of and issues faced by these priority groups, which in turn influence the locally tailored actions set out in this plan.

Priority GroupNeeds and Issues to Be Addressed
Needs and Issues to Be Addressed
  • Language barriers
  • Higher prevalence of pregnancy risk factors, e.g., obesity
  • Poor access to antenatal education
  • Inferior experiences of clinical care
Populations in highly deprived areas
  • More frequent late attenders
  • Higher prevalence of pregnancy risk factors e.g., smoking and substance abuse
  • Poorer clinical outcomes e.g., less likely to breastfeed
Young birthing people
  • Higher prevalence of pregnancy risk factors e.g., smoking, and intimate partner violence
  • Poorer clinical outcomes e.g., less likely to breastfeed
  • More likely to have poor mental health post-partum

Following a strategic review of outcomes at the end of year one, this plan will consider additional priority groups based on other protected characteristics, such as disability.

Action Plan

To meet the needs of these priority groups, the East Sussex plan is focused on a targeted set of priority improvements – set out in the table below. These include both core interventions in line with national guidance, and additional interventions given the characteristics of the local population and the operating context.

These priority action areas will be phased over three years in line with the LMNS system goals for 2022-25. The priority improvements, sequencing and key milestones are shown in the charts below

Action AreaEast Sussex Priority ImprovementsRelevant National Priorities
Implementing and embedding Continuity of CarerRoll out continuity of carer (CoC) teams, targeted at BAME, deprived and young birthing people - with co-produced tailored communications4c
Offering personalised care, tailored to individual needContinue work with faith groups to tailor messages to BAME group about healthy pregnancies through COVID, plus expansion maternity vaccination champions

Reinforce specific Standard Operating Procedure (SOP) at ESHT for lowering the clinical threshold of face-to-face review for COVID-positive patients from at-risk groups

Identify funding options for making available hard copies of PCSPs (Personalised Care and Support Plans), together with co-produced review of their user friendliness and specific skills required by midwives to use them most effectively

Pilot co-location of maternity services with community hubs in deprived areas

Undertake trials and then longer-term initiatives to develop contributions of non-birthing parents in targeted population groups to promote safe and effective co-parenting
1, 2, 4b, 4e
Supporting long-term maternal health and wellbeingActively promote access to the maternal medicine network (MMN) for underserved groups

Work with specialist midwife to develop direct referral pathways into diabetes prevention programme from maternity services for women and birthing people post-pregnancy

Implement the Long-Term Plan (LTP) mental health service, which will improve access to psychological support for at-risk service users

Work with local authority to identify scope to develop perinatal mental health peer support service to widen access to maternal mental health services among at-risk groups

Consider how wider access to mental health support for young birthing people could be achieved

Ensure that pelvic health services are targeted at underserved groups
4a, 4b, 4e
Addressing perinatal risk factorsStart working towards UNICEF Baby Friendly accreditation for ESHT, as they are currently not accredited for maternity services.

Implement the maternal smoke-free pregnancy pathway, initially targeted at deprived & young groups, working towards stop-smoking services being available to all service users

Equip continuity of carer teams to provide tailored infant feeding support in all priority demographic groups

Maximise capacity of public health midwife for weight management pathways

Ensure equitable reach of communications re. pre-conception, prevention, and risky behaviours
4c
Supporting our workforceIncreasing awareness of existing support offer for BAME staff

Identifying EDI champions (Equality, Diversity, and Inclusion champions) within maternity services and teams, supporting them with resources and learning from the REAL strategy in UH Sussex

Focussed listening, storytelling, and co-production to support improved experience of ethnic minority staff

Increasing participation of BAME maternity and neonatal staff in the SHCP Talent Management and Leadership programmes

Supporting uptake of new SHCP cultural competency training

Continue working with Quality and Safeguarding team and SHCP to update Serious Incident (SI) templates and SOPs so ethnicity, language and culture are included

Progress conversations and next steps around breaking down Workforce Race Equality Standard (WRES) data by specialty; then embed monitoring and responding to local WRES data as business-as-usual (BAU)
4a, 4c, 4d
Data, strengthening leadership and continuing quality improvementEnsure that services (including mental health services) routinely collect the national process and outcome measures data broken down by ethnicity and postcode, to inform co-produced service development.

Use available data to reduce the number of women and birthing people not interacting with the service before birth

Supporting digital interoperability to be in place across all services

Support Maternity Voices Partnerships (MVPs) to reach out to under-represented groups and better reflect the diversity of our local population, e.g., through collaboration with local authority Community Development Workers, in line with NICE QS 167.

Develop place, district and neighbourhood governance and relationships

Link in with upcoming SHCP population health management strategy (SHCP PHM strategy) to ensure alignment and consistency
1, 2, 3, 4b, 5

West Sussex

Birthing Population Context

Most birthing people in West Sussex come from white backgrounds, as evidenced in Trust data from November 2020 to October 2021. The proportion of birthing people from BAME backgrounds – predominantly from Asian groups – was low (4.4%) at UHSx (West), but the figure increased (12%) at UHSx (East) and was much higher (24%) at SASH. BAME service users are clustered in Crawley – with significant diversity – together with significant pockets in Mid-Sussex, Worthing, and Arun. It is notable that West Sussex has a young BAME population compared to the general population, with the largest proportion of the group being working age. One of the most striking perinatal inequalities for the BAME group across West Sussex relates to stillbirths: 33% of stillbirths at SASH (two out of six) were to Asian or Asian British birthing people in the 12 months prior to November 2021.

Based on figures of non-English languages spoken in West Sussex and by service users at UHSx in 2019-20, non-British white birthing people constitute a significant group. Polish and Romanian accounted for over half of non-English languages spoken by service users, with a particular concentration of Eastern European groups in Bognor.

The most deprived population groups in West Sussex are clustered around Crawley and in Arun – particularly Littlehampton and Bognor Regis – where three wards fall within the most deprived decile nationally and a further seven in the most deprived quintile. A fifth of the births at University Hospitals Sussex West in the 12 months prior to November 2021 were to birthing people living in deprivation (based on postcode), and the same proportion of birthing people experienced complex social issues.

Young birthing people in West Sussex – who can intersect with those living in deprivation – experience specific vulnerabilities. Between November 2020 & November 2021, 45% of young parent clients supported by the West Sussex Family Nurse Partnership reported existing mental health issues on recruitment to the programme. In addition, approximately 40% of young parent clients supported by this service disclose current intimate partner violence.

Provider Context

Two acute trusts provide maternity and neonatal services in West Sussex. University Hospitals Sussex NHS Foundation Trust (UHSx) caters to service users in the west of the region at its sites in Chichester and Worthing, and to service users in the east of the region at its Haywards Heath site. Surrey and Sussex Healthcare NHS Trust (SaSH) caters to service users in the north of the region. SaSH is officially part of the Surrey Heartlands LMNS but has close relationships with Sussex LMNS. This includes a Sussex-focused co-chair of its Maternity Voice Partnership. Sussex Community NHS Foundation Trust provides maternity-related community-based services in the area, whilst Sussex Partnership NHS Foundation Trust provides perinatal mental health services.

Whilst it has not yet been possible to break down WRES data for maternity and neonatal staff specifically, there is no reason to believe that the experiences of these staff are different to those of staff overall. Trust-wide 2020 summary data for Western Sussex Hospitals NHS Foundation Trust – before it merged to become UHSx – showed that 16% of BAME employees had experienced workplace discrimination by colleagues, compared to only 6% of non-BAME employees. Combined with disproportionate responses on other WRES indicators – such as believing that the Trust provides equal opportunities for career progression or promotion – these results characterise a consistently poorer workplace experience for BAME employees compared to their non-BAME counterparts.

Priority Demographic Groups

To focus on interventions which are most likely to have the biggest impact on reducing perinatal health inequalities, the West Sussex perinatal equity steering group has identified five priority demographic groups for targeted action – based on the extent of health inequalities they experience, the relative size of the group compared to other groups, and national priorities.

This identification accounts for why these three groups were the focus of the birthing population context summarised in the section above. The table below sets out the needs of and issues faced by these priority groups, which in turn influence the locally tailored actions set out in this plan.

Priority GroupNeeds and Issues to Be Addressed
BAME (most notably Asian ethnic group)
  • Language barriers
  • Higher prevalence of pregnancy risk factors, e.g., obesity
  • Poor access to antenatal education
  • Inferior experiences of clinical care
Populations in highly deprived areas
  • More frequent late attenders
  • Higher prevalence of pregnancy risk factors e.g., smoking and substance abuse
  • Poorer clinical outcomes e.g., less likely to breastfeed
White non-British
  • Language barriers
  • More frequent late booking
  • Higher prevalence of pregnancy risk factors, e.g., drinking and smoking in early pregnancy
Rural communities
  • Challenges with physically accessing services
Young birthing people
  • Higher prevalence of pregnancy risk factors e.g., smoking, and intimate partner violence
  • Poorer clinical outcomes e.g., less likely to breastfeed
  • More likely to have poor mental health post-partum

Following a strategic review of outcomes at the end of year one, this plan will consider additional priority groups based on other protected characteristics and local demographics. In West Sussex, we are likely to consider refugees and asylum-seekers, those from the Traveller community, and birthing people with pre-existing mental health needs. Developing our understanding of local needs through ensuring diverse representation in co-production will be central to this.

Action Plan

To meet the needs of these priority groups, the West Sussex plan is focused on a targeted set of priority improvements – set out in the table below. These include both core interventions in line with national guidance, and additional interventions given the characteristics of the local population and the operating context.

These priority action areas will be phased over three years in line with the LMNS system goals for 2022-25. The priority improvements, sequencing and key milestones are shown in the charts below.

Action AreaWest Sussex Priority ImprovementsRelevant National Priorities
Implementing and embedding Continuity of CarerRoll out continuity of carer (CoC) teams, targeting BAME birthing people and deprived areas - with co-produced tailored communications

Explore development of enhanced training offer for CoC teams, learning from what works well in Family Nurse Partnerships (small effective teams; emotionally aware interviewing etc)
a4c
Offering personalised care, tailored to individual needContinue work with faith groups on tailored communication for pregnant BAME women and birthing people, and reach out via a wider range of settings

Implement Standard Operating Procedure (SOP) to lower clinical threshold of face-to-face review for at-risk women and birthing people

Pilot co-location of maternity services with community hubs in areas that (i) have large BAME groups e.g., Crawley (ii) are accessible to rural communities

Make Personalised Care and Support Plans (PCSPs) easier to engage with (plain language, multiple languages, digital etc) and support service users and staff to use them most effectively

Translate key documents into wider range of languages (e.g., FNP materials, appointment letters) and share translated Ready for Pregnancy materials widely

Undertake trials and then longer-term initiatives to develop contributions of non-birthing parents in targeted population groups to promote safe and effective co-parenting
1, 2, 4b, 4e
Supporting long-term maternal health and wellbeingActively promote access to the new maternal medicine network (MMN) for underserved groups

Work with the specialist midwives to develop direct referral pathways into diabetes prevention programme from maternity services for women and birthing people post-pregnancy

Implement the Long-Term Plan (LTP) mental health service, which will improve access to psychological support for at-risk service users

Consider how wider access to mental health support for young birthing people could be achieved
4a, 4b, 4e
Addressing perinatal risk factorsProgress UNICEF Baby Friendly accreditation for providers, as currently not accredited for maternity services

Implement a smoke-free pregnancy pathway, focussing initially on deprived areas, young birthing people, and white non-British people, and working towards stop-smoking services being available to all service users

Build on SASH's approach of identifying a service user champion for infant feeding to provide infant feeding support, particularly among young birthing people and people in deprived areas

Renew focus for midwives on supporting birthing people to recognise and report reduced foetal movements

Ensure that pelvic health services are targeted at underserved groups

Ensure equitable reach of comms re. pre-conception, prevention, and risky behaviours
4c
Supporting our workforceSupport uptake of existing training - across diversity and inclusion, unconscious bias, trust, and cultural competency (including training resources from REAL ambassadors and SHCP-wide training)

Support EDI champions (Equality, Diversity and Inclusion champions, incl. ambassadors of the Recognition, Equity, Advocacy and Leadership strategy)) to drive forward their priorities with sufficient time and resource

Raise awareness of upcoming SaSH inclusion strategy

Progress conversations and next steps around breaking down Workforce Race Equality Standard (WRES) data by specialty; then embed monitoring and responding to local WRES data as business-as-usual (BAU)

Link with Neonatal Operational Delivery Network (NODN) to explore data on neonatal workforce diversity

Engage BAME staff in co-production through Staff Networks, incl. considering differences in experiences between local and overseas staff

Expand overseas recruitment to improve staff diversity and representativeness

Increase intake of maternity and neonatal staff in SHCP Talent Management and Leadership programmes
a4a, 4c, 4d
Data, strengthening leadership and continuing quality improvementEnsure that services (including mental health services) routinely collect the national process and outcome data measures broken down by ethnicity and postcode, to inform co-produced service development

Use available data to reduce the number of women and birthing people not interacting with the service before birth

Supporting digital interoperability to be in place across all services

Support Maternity Voices Partnerships (MVPs) to reach out to under-represented groups and better reflect the diversity of our local population, e.g., through outreach via common contact points for birthing people in deprived areas and social hubs for white non-British birthing people, in line with NICE QS 167.

Develop place, district and neighbourhood governance and relationships

Link in with upcoming SHCP population health management strategy (SHCP PHM strategy) to ensure alignment and consistency
1, 2, 3, 4b, 5

Brighton & Hove

Birthing Population Context

The proportion of birthing people coming from BAME backgrounds in Brighton & Hove is the highest across Sussex. Out of the total number of deliveries in 2020-21, 11.8% were to BAME birthing people (4.8% Asian, 3.5% Mixed background, 1.7% Black background). In Brighton & Hove, BAME groups comprise a larger proportion of the 20-44 age group, with a notable peak of Black/Black British residents aged 20-24 years. BAME service users in 2020/21 were clustered around Central Hove (38.7% of BAME service users) and Central Brighton (20.7%).

In terms of inequalities experienced by BAME birthing people, the rate of emergency caesarean sections in 2020-21 at UHSx East was between 38% and 46% for those from varied Black backgrounds, compared to 18% for those from a White background. UHSx East data for 2020-21 shows that Black Caribbean birthing people specifically experienced a disproportionately higher rate (64%) of births leadings to post-partum haemorrhage of more than 500ml, compared to a national average of 30%.

A fifth of the Brighton and Hove population live within the most deprived quintile nationally, clustered around the areas of Whitehawk, Moulsecoomb and Hollingbury. In 2021, 12.5% of households in Brighton & Hove contained a working age adult claiming housing benefits, compared to 10.2% nationally. As deprivation increases, the proportion of birthing people experiencing complex social factors also increases – data from 2017-18 indicates that 7.6% of birthing people in Brighton & Hove experienced such factors. The number of families with dependent children who are single-parent households is higher than the national average in Brighton. Recent anecdotal evidence from professionals in the field also indicates that the number of birthing people with a previous history of mental health issues is increasing – with the increasing likelihood of birthing complications that this entails.

Provider Context

University Hospitals Sussex NHS Foundation Trust (UHSx) provides maternity and neonatal services for service users in the area, from its Royal County Sussex site in Brighton and at Haywards Heath. Sussex Community NHS Foundation Trust provides maternity-related community-based services in the area, whilst Sussex Partnership NHS Foundation Trust provides perinatal mental health services.

Whilst it has not yet been possible to break down WRES data for maternity and neonatal staff specifically, there is no reason to believe that the experiences of these staff are different to those of staff overall. Trust-wide 2020 summary data for Brighton & Sussex University Hospitals NHS Foundation Trust – before it merged to become UHSx – showed that 16% of BAME employees had experienced workplace discrimination by colleagues, compared to only 7% of non-BAME employees. Combined with disproportionate responses on other WRES indicators – such as believing that the Trust provides equal opportunities for career progression or promotion – these results characterise a consistently poorer workplace experience for BAME employees compared to their non-BAME counterparts.

Priority Demographic Groups

To focus on interventions which are most likely to have the biggest impact on reducing perinatal health inequalities, the Brighton & Hove perinatal equity steering group has identified five priority demographic groups for targeted action – based on the extent of health inequalities they experience, the relative size of the group compared to other groups, and national priorities.

This identification accounts for why these three groups were the focus of the birthing population context summarised in the section above. The table below sets out the needs of and issues faced by these priority groups, which in turn influence the locally tailored actions set out in this plan.

Priority GroupNeeds and Issues to Be Addressed
BAME (most notably Asian, Black, and Mixed groups)
  • Language barriers
  • Higher prevalence of pregnancy risk factors, e.g., obesity
  • Poor access to antenatal education
  • Inferior experiences of clinical care
Populations in highly deprived areas
  • More frequent late attenders
  • Higher prevalence of pregnancy risk factors e.g., smoking and substance abuse
  • Poorer clinical outcomes e.g., less likely to breastfeed
Young birthing people
  • More frequent late attenders
  • Higher prevalence of pregnancy risk factors e.g., smoking and substance abuse
  • Poorer clinical outcomes e.g., less likely to breastfeed
Birthing people experiencing complex social factors
  • Barriers to accessing services
Birthing people with a previous history of mental health issues
  • Increased risk of mental health issues during and after pregnancy
  • Poorer clinical outcomes associated with delivery

Following a strategic review of outcomes at the end of year one, this plan will consider additional priority groups based on other protected characteristics and local demographics. In Brighton & Hove, we are likely to consider refugees and asylum-seekers (both newly settled and newly arrived). Developing our understanding of local needs through ensuring diverse representation in co-production will be central to this.

Action Plan

To meet the needs of these priority groups, the Brighton & Hove plan is focused on a targeted set of priority improvements – set out in the table below. These include both core interventions in line with national guidance, and additional interventions given the characteristics of the local population and the operating context.

These priority action areas will be phased over three years in line with the LMNS system goals for 2022-25. The priority improvements, sequencing and key milestones are shown in the charts below.

Action AreaBrighton & Hove Priority ImprovementsRelevant National Priorities
Implementing and embedding Continuity of CarerRoll out continuity of carer (CoC) teams, targeted at BAME, deprived and young birthing people - with co-produced tailored communications 4c
Offering personalised care, tailored to individual needWork with the Ethnic Minority Achievement Service (EMAS), faith leaders and Voluntary, Community and Social Enterprise (VCSE) organisations to ensure health messages are culturally appropriate and BAME parent voices are heard

Work with faith leaders on tailored communications for pregnant BAME women and birthing people

Ensure all BAME mothers and families are aware of peer support groups, and support expansion of their reach pending evaluation

Make Personalised Care and Support Plans (PCSPs) easier to engage with (plain language, multiple languages, digital) and support service users and staff to use them most effectively - work with the expertise of language advisors within Ethnic Minority Achievement service

Ensure midwifery and health visiting services are integral in any move to develop the current Children's Centres into Family Hubs

Undertake trials and then longer-term initiatives to develop contributions of non-birthing parents in targeted population groups to promote safe and effective co-parenting
1, 2, 4b, 4e
Supporting long-term maternal health and wellbeingActively promote access to the new maternal medicine network (MMN) for underserved groups

Work with specialist midwife to develop direct referral pathways into diabetes prevention programme from maternity services for women and birthing people post-pregnancy

Implement the Long-Term Plan (LTP) mental health service, which will improve access to psychological support for at-risk service users

Work with local authority to identify scope for developing perinatal mental health peer support service to widen access to maternal mental health services among at-risk groups

Consider how wider access to mental health support for young birthing people (who are at greater risk of poor mental health, particularly post-partum) could be achieved

Develop assurance and audit routes for the LMNS on implementation of NICE CG110 clinical guidance for birthing people experiencing complex social factors

Learn from Brighton Healthy Futures Team's engagement strategies that work for young birthing people and those experiencing complex social factors to inform wider health visiting practice

Ensure that pelvic health services are targeted at underserved groups of pregnant people
4a, 4b, 4e
Addressing perinatal risk factorsProgress UNICEF Baby Friendly accreditation for UHSx and health visiting service, as currently not accredited for either service.

Equip continuity of carer teams to provide tailored infant feeding support in all priority demographic groups

Implement a smoke-free pregnancy pathway, focussing initially on deprived areas, young birthing people and birthing people experiencing complex social factors, and working towards stop-smoking services being available to all service users

Ensure equitable reach of comms re. pre-conception, prevention, and risky behaviours
4c
Supporting our workforceSupport uptake of SHCP cultural competency training - incl. utilising further resources from REAL (Recognition, Equity, Advocacy and Leadership) ambassadors in West Sussex

Progress conversations and next steps around breaking down Workforce Race Equality Standard (WRES) data by specialty; then embed monitoring and responding to local WRES data as business-as-usual (BAU)

Link with Neonatal Operational Delivery Network (NODN) to explore data on neonatal workforce diversity

Build trusted relationships and co-production approaches with BAME staff e.g., through Staff Networks, and consider differences in experiences between local and overseas staff

Increase intake of maternity and neonatal staff in SHCP Talent Management and Leadership programmes
4a, 4c, 4d
Data, strengthening leadership and continuing quality improvementEnsure that services (including mental health services) routinely collect national process and outcomes measures data broken down by ethnicity and postcode, to inform co-produced service development.

Use available data to reduce the number of women and birthing people not interacting with maternity services before birth

Supporting digital interoperability to be in place across all services

Support Maternity Voices Partnerships (MVPs) to reach out to under-represented groups and better reflect the diversity of our local population, in line with NICE QS167.

Develop place, district and neighbourhood governance and relationships

Link in with upcoming SHCP population health management strategy (SHCP PHM strategy) to ensure alignment and consistency
1, 2, 3, 4b, 5

Role of the LMNS in Delivering the Plan

Introduction

Our Sussex LMNS is crucial to delivering this plan – fulfilling three key roles for the ICS (as set out in our 2019 Local Maternity System Plan):

  1. Co-designing services with users and families
  2. Supporting organisations to deliver local change
  3. Leading system-wide collaboration and transformation

To fulfil all three roles, we will operate both as an “LMNS at Place” and “LMNS at system”.

For this plan to be effective it needs to be adapted and implemented at a Place level, allowing it to be fully owned and matched to local need. We will support delivery through Place-based perinatal equity steering groups – these groups have been mobilised during planning and will now take a lead role in overseeing and delivering our plan.

The Place-based groups will report into both the LMNS Board and Place-based Executive Leadership Groups, with subsequent upwards reporting through to the SHCP Executive Board.

Governance via the Place-based Executive Leadership Groups will provide the ICS with oversight and assurance of local plans, as well as driving wide-ranging collaboration at local level to support maternity and neonatal service providers. For example, this could entail involving local Equity and Equality Teams, Teenage Pregnancy Leads or One-Stop Drug and Alcohol services.

At the same time, we will assure overall progress against this programme on behalf of the ICS. In addition, some areas of work will benefit from Sussex-wide collaboration at a system level; to support this, the LMNS Board will informally report to and share information with both the Turning the Tide Oversight Board and Population Health and Prevention Board.

Co-designing Services with Users and Families

Co-production is key to improving our services in the way that best meets the needs of our local population. Sussex has a strong track record of co-production, evidenced by successful examples highlighted throughout this plan. We are committed to involving women and birthing people, their families and support, and staff, in reviewing and refining this plan over the next three years.

To co-produce this plan, we facilitated weekly Place-based working sessions with:

  • Maternity Voices Partnership (MVP) Chairs and/or Co-Chairs
  • Staff from maternity and neonatal services, including heads of midwifery, matrons, Better Births leads, and service managers for the health visiting service and a specialist young birthing people’s service
  • Commissioning leads
  • System partners, including representatives from population health, public health, and local authorities

Tactically, we will build on this work in the short-term by:

  • Supporting the Place-based working groups who co-produced the plan to transition into formal groups taking a lead role in oversight and delivery
  • Circulating the plan to MVP service user representatives and signposting to opportunities for co-production in their relevant neighbourhood or Place
  • Uploading the plan onto its website and signposting staff to opportunities for co-production in their relevant Place or organisation

Strategically, we are committed to supporting partners systematically embed co-production into business-as-usual processes. In practice, this means incorporating the following ingredients LMNS-wide – with strong involvement from MVPs:

Right purpose

  • Agree a definition and set of guidelines for co-production, distinct from consultation
  • Build a culture where co-production is valued and appreciated across all providers and Places
  • Identify opportunities for systematic and purposeful co-production – e.g., as a pillar of developing Equality and Health Inequalities Impact Assessments

Right positioning

  • Agree principles for how co-production outputs should feed directly into service design and improvement
  • Agree principles to identify opportunities for co-production at project initiation stage

Right participation

  • Expand targeted outreach to underrepresented groups (building on successful co-production approaches from other programmes such as vaccinations) – e.g., working with trusted community leaders and faith groups to identify community assets, potential service user representatives and accessible physical locations
  • Include a range of participation routes – e.g., drop-in sessions, 1:1 feedback with trusted staff, on-the-ground walks, virtual sessions
  • Invite MVP representatives to formal governance forums

Right processes

  • Put in place a feedback loop to show co-producers the impact of their contributions
  • Agree an expanded support offer for co-production participants, including an involvement payment where appropriate
  • Coordinate lesson-sharing across the LMNS so providers and Places benefit from shared resources and minimise “feedback fatigue”
  • Establish opportunities for regular review of co-production mechanisms in each Place to ensure they follow agreed and best-practice principles

At a Place and neighbourhood level, co-production approaches will be tailored to the local context – supported by these LMNS-wide ingredients. For example, the BAME peer support programme in Brighton run by The Motherhood Group has been working with BAME service users on perinatal mental health and wellbeing to co-produce and inform ongoing support. As another example, UHSx co-produced with Arabic-speaking service users a series of antenatal classes delivered in Arabic.

Building lived experience service user groups in collaboration with VCSE organisations in Brighton

In Brighton, linking in maternity and neonatal services with local voluntary, community and social enterprise organisations has enabled identifying and approaching appropriate individuals to set up lived experience service user groups. These are valuable forums for targeting co-production and engagement.

Places’ core co-production activities are described in the Place-based plans set out earlier in this document. Places will supplement these core activities with specific meetings and dates as they undertake more detailed implementation planning. Activities include, but are not limited to:

  1. Co-producing communications – e.g., to inform service users about what the Continuity of Carer pilot roll-out means for them
  2. Developing and tailoring key documents – e.g., learning from staff and service users what it takes for Personalised Care and Support Plans to be effective and used well
  3. Bringing perspectives from underrepresented voices into service design and delivery – e.g., supporting MVPs engage harder-to-reach groups
  4. Further understanding and acting on poor experiences of BAME staff in the workplace – e.g., through curated listening and storytelling exercises
  5. Identifying requirements for further training – e.g., informing additional requirements for cultural competency training to supplement ICS-wide training

Appendix 4a sets out the key groups in each Place who can support co-production initiatives. Appendix 4b provides a fuller map of the community assets in each Place.

Supporting Organisations to Deliver Local Change

Implementation Framework

Implementation of this plan will occur at Place level, driven forward by the Place-based perinatal equity steering groups. We will support these groups to effect change on the ground and maintain a focus on delivery at system level. The implementation framework set out below will support the groups to do this. The framework sets out key questions related to what it will take to implement this plan effectively. It will also support a cycle of planning, doing and evaluation through the life of this plan to ensure that the approach set out in the plan become business as usual.

Roles and Responsibilities

We have defined the roles and responsibilities of system partners in delivering this plan, including who will be accountable (A), responsible (R), consulted (C) and informed (I) for delivery of each improvement opportunity sitting underneath the national priorities. A summary is provided in the table below – more detail can be found in Appendix 5.

The Programme Director of the LMNS is the senior responsible owner of this plan for the LMNS. The ICS board-level sponsors of the plan are the LMNS CEO Executive Sponsor and the ICS Chief Nursing Officer who sits as the LMNS Executive Chair. The ICS Executive Manager Director for West Sussex provides ongoing executive oversight of the plan and support to the LMNS Programme Director. The ICS has agreed an NHSE/I funded LMNS core team who will support these senior personnel with their sponsorship and oversight responsibilities.

The Chief Nursing Officers of UHSx and ESHT are the provider board-level safety champions overseeing this plan, leading on maternity and neonatal disparity. They also lead on perinatal health inequalities for their organisations. The Directors of Public Health, CCG Chief Medical Officer and ICS Clinical Director lead on Population Health Management, Prevention and Health Inequalities across the ICS. They are supported by the Programme Director for Population Health Management and Prevention and the core programme team who support these senior personnel with their sponsorship and oversight responsibilities.

Leading System-wide Collaboration and Transformation

Supporting continuous clinical quality improvement

Delivering our vision for maternity services will require ongoing work and improvement – we will continually review our performance as a system, identifying key gaps, unmet needs, and opportunities to improve the quality and experience of our services.

This will need: 1) relationships and collaboration between partners, 2) granular up-to-date performance data, and 3) system-level structures to review and identify target improvement opportunities.

The LMNS Board is our primary mechanism to drive transformation, integrating our work on health inequalities with wider improvements in perinatal safety and mortality, maternal choice, and personalisation. This forum brings together clinicians from across partner organisations to disseminate and implement learnings across the system, including corrective actions from adverse events, new evidence and best practice, and innovative new models of care. These forums will allow us to engage the passion and drive of individuals within local teams, engaging all members in quality improvement and supporting the development of grassroots initiatives.

Multi-professional learning and discussion helps break down boundaries between individuals and organisations and instil an academic rigour in quality improvement projects. This will help service improvements deliver the greatest possible impact and value, whatever their scale.

The LMNS Quality and Safety Forum sits alongside the Board. The Forum will be responsible for reviewing performance data and identifying gaps and priorities – this will feed into the LMNS Board to design and implement mechanisms to address. The Maternity dashboard will develop to include reporting by ethnicity and deprivation for key outcome metrics.

The Quality and Safety Forum will regularly monitor trends in the data to ascertain where changes might be needed in the system approach (e.g., new service user needs leading to new requirements for audit or co-production) and will conduct, at minimum, an annual review to incorporate lessons from national and regional best practice and analysis, including the MBRRACE report. We will facilitate lesson-sharing and spreading of clinical best practices across the LMNS, as per the Perinatal Quality Surveillance Model, to support information flow and improvement across Sussex.

Strong, multi-professional clinical leadership to translate system-level planning into action, within individual organisations. The LMNS has existing membership from the provider Heads of Midwifery and nominated LMNS Obstetric and Neonatal consultant leads. As our role evolves to take on more of an assurance function alongside transformation, we will review our clinical leadership requirements and support for individuals to ensure we have the right seniority and level of clinical engagement needed.

Monitoring of outcomes and progress against the plan

We will champion ongoing high-quality data collection to understand how well the plan is addressing the needs of local populations. The key tool for monitoring outcomes will be the maternity services dashboard, with priority metrics broken down by key demographic groups. See Appendix 2 for a detailed breakdown of where national indicators are already in place, and where these will be broken down by key demographic groups.

Whilst the LMNS will coordinate monitoring of outcomes and progress against the plan, responsibility for this sits at all levels within the ICS:

  • Providers will monitor how their service delivery is reducing inequality for users, to understand the impact of interventions and direct local efforts to where they are most needed
  • Places will monitor how inequalities are reducing for the population within their geographical area, to identify trends and changing patterns of needs
  • The LMNS – on behalf of the ICS – will monitor system-wide progress against deliverables in the plan, together with their impact on reducing inequality, at a system level

To coordinate monitoring of outcomes and progress against this plan we will support the following new information flows to be put in place:

  • Following presentation to the Place-based Executive Group, a highlight report will be sent to the LMNS Board. These highlight reports will include progress made against the plan since the last report, next steps, and any requests for additional support from the LMNS
  • Annual system-level stocktakes against the plan, reviewing progress, current challenges and additional support needed. This will be aligned with and inform the annual planning round

Managing interdependencies with other ICS workstreams

We will proactively manage key interdependencies with cross-cutting enabler ICS workstreams:

Cross-cutting ICS workstreamLevel of interdependencyCommentary on interdependencies
Workforce High
  • There are fundamental issues to resolve regarding staffing shortages and sustainable staffing models - this is most pertinent for Continuity of Carer teams.
  • HR challenges vis-à-vis retention, sensitively measuring inequality of staff experience and implementing the WRES are key ingredients of this plan.
Digital High
  • The most notable digital requirement for several interventions in the plan is interoperability of data and cross-service access to patient information. This is being progressed using funding from the Unified Tech Fund.
  • Several interventions in the plan rely on digital tools - e.g., taking PCSPs online
Estates High
  • There are fundamental issues to resolve vis-à-vis having the right estates model in place to support setting up of community hubs
Finance Low
  • Maternity funding usually flows through regular commissioning contracts and national transformation funds, rather than specific ICS-brokered channels
Population Health Management, Prevention, and Inequalities High
  • The Sussex Perinatal Equity and Equalities plan is the delivery mechanism for the perinatal equity aspects of this programme (see further commentary below)
Turning the Tide High
  • The Sussex Perinatal Equity and Equalities plan is the delivery mechanism for the perinatal equity aspects of this workforce race equality programme (see further commentary below)

Given the close ties between the vision for this plan and the ICS’s overall Population Health Management, Prevention, and Inequalities programme, we will build on existing links with this programme team and put in place arrangements for regular information sharing – for example, via the existing Place-based weekly meetings that oversee work on addressing health inequalities. When the ICS Population Health Strategy is published, we will conduct a review to ensure that this plan is aligned with the strategy.

There are also close ties between the staff equality elements of this plan and the work of the Turning the Tide Transformation Oversight Board, which has oversight of the BAME population and workforce inequalities. A representative from Turning the Tide was involved in the working groups to develop this plan so far, as well as being involved in additional focussed discussion on the race equality elements. This relationship will continue to develop through delivery of the plan to share best practice. We will proactively engage with the Turning the Tide board to manage interdependencies and report on progress as appropriate.

Financial implications

This plan does not entail committing to increased levels of spending. The key difference will be in how we use the existing money available to us. Our commissioning will be increasingly needs-led and focused on priority target demographics – until this becomes business-as-usual. In line with the principle of proportionate universalism, we will target spending in a way that meets the needs of our most disadvantaged groups whilst still providing service improvements for all. Where any additional revenue or capital investment is needed, system partners will develop specific business cases as per normal ICS processes. Where additional transformation money from national sources is made available, we will ensure that is targeted and spent as intended.

Resourcing

We will map out the extent to which existing programme resourcing, at both system and Place level, covers the capacity and capabilities required to deliver the actions set out in this plan. Following collaboration with Places on this exercise, we will be well-placed to determine if there are any resourcing gaps and how best to address these.

In addition, system partners are committed to this work and will provide resourcing on a business-as-usual basis as part of their involvement – for example, analytical support from the ICS Population Health & Prevention Team, and involvement of local authority public health and commissioning teams in the Place-based perinatal equity steering groups.

Stakeholder Communication

We will engage and continue to develop this plan with a wide range of stakeholders, as set out in the table below.

Stakeholder GroupMethod of CommunicationTiming
Providers and front-line staff
  • Engage and co-produce with providers through Place-based governance
  • Offer guidance on implementing the plan to providers
  • Upload this plan and summary to LMNS website showing how it builds on our 2019 Local Maternity System plan
  • Design and disseminate tailored communications for staff about how they can find out more, ask questions and get involved through co-production
From Feb 2022
Commissioners
  • Engage and co-produce with commissioners through Place-based and System-level governance
  • Offer guidance on commissioning practice that promotes proportionate universalism
From Feb 2022
Sussex Health and Care Partnership (SHCP) programmes
  • Update on progress via regular SHCP information flows
  • Proactively engage with interdependent SHCP programmes, including upcoming population health strategy
  • Collaborate with the Population Health Management, Clinical Intelligence and Analytics group on analytical support for delivery and further development of the plan
From Feb 2022
Perinatal Mental Health Network (PMHN)

Neonatal Operational Delivery Network (NODN)
  • Discuss implications of relevant sections of plan
  • Agree ways of working to support implementation
From March 2022
Service Users and Maternity Voices Partnerships (MVPs)
  • Upload this plan and summary to LMNS website showing how it builds on our 2019 Local Maternity System plan
  • Design and disseminate tailored communications for service users about how they can find out more, ask questions and get involved through co-production
  • Discuss plan with service user reps from all relevant MVPs
  • Co-produce more detailed action planning with service user reps from all relevant MVPs
From Feb 2022
Voluntary, Community and Social Enterprise (VCSE) organisations
  • Discuss implications of relevant sections of plan
  • Agree ways of working to support collaborative implementation - at Place-level - where relevant
From March 2022

Next Steps

Immediate next steps for starting to deliver this plan are as follows:

  • Establish Place-based leads – each Place-based steering group will appoint a lead responsible for championing and driving progress against the local plan
  • Identify any additional resourcing requirements – we will work together with Places to determine any resourcing gaps that pose a risk to delivery of this plan, and identify solutions
  • Establish key maternity metrics to break down by demography – we will facilitate agreement between Places on the top 10 metrics displayed on the maternity dashboard to be broken down and scrutinised by ethnicity, level of deprivation and age
  • Confirm robust governance arrangements – we will support set-up of the governance arrangements set out in this plan to ensure that Place-based plans are locally owned and highlight reports on progress are regularly sent to Place-based Executive Groups
  • Establish a multi-disciplinary clinical leadership model – we will work with local Places to identify appropriate clinical leaders – spanning both GPs and hospital clinicians – and define their role in supporting nursing, midwife, and managerial staff to drive forward this plan
  • Set up a regular rhythm of review – we will set up a regular review cycle to ensure that this plan is reviewed on an annual basis, aligned with the annual national planning cycle

Appendix 1 - Plan on a Page

Appendix 2 - Stocktake of Current Progress

The table below provides an overview of the LMNS’ progress against the national priority interventions in each Place, from the perspectives of the LMNS and place-based commissioners.

Appendix 3 - Metrics for Equity and Equality

The following table shows where data for the national indicators is currently available, and where these indicators will be broken down further by ethnicity, deprivation, and age. These metrics will be regularly reviewed via the maternity services dashboard.
A few other metrics are also in development. This includes:

  • The number, ethnic breakdown, and vaccination status of COVID positive pregnant people
  • Maternity information system data quality for increased COVID risk factor recording
  • Local agreement on further metrics to break down by ethnicity, deprivation, and age. This will be facilitated by the LMNS as part of next steps

Key

Data currently available

● = Yes
○ = No
◑ = In some places

Metric to be made available broken down by ethnicity, deprivation, and age

✓ = In line with national guidance
D = To be agreed locally
– = Not applicable

Related priorityIndicatorData currently availableMetric to be made available broken down by ethnicity, deprivation, and age
1Implementation of the COVID-19 four actions-
1Women using folic acidD
2 The number of women with a Personalised Care and Support Plan which covers:
  • antennal care by 17 weeks gestation
  • intrapartum care by 35 weeks gestation
  • postnatal care by 37 weeks gestation
The numbers of women who had all three of the above in place by the gestational dates
3 The MSDS contains a valid postcode at booking for 95% of birthing people booked in the month -
3 Ethnicity data quality -
4b The Maternal Medicine Network is implementing the KPIs in the non-mandatory national service specification ○ (applicable when MMN is in place)
4b Booking at <70 days gestation D
4b For each complex social factor grouping, the number of women who: attend for booking by 10, 12+6 and 20 weeks; and attend the recommended number of antenatal appointments D
4b % Of parent members of the MVP who are from ethnic minority groups D
4b % Of women attending the booking appointment who are from ethnic minority groups D
4b Ethnicity data quality -
4c Placement on a continuity of carer pathway - Black/Asian women D
4cPlacement on a continuity of carer pathway - women living in the most deprived areas D
4c Baby Friendly accreditation -
4c Breast milk at first feed D
4c Deliveries under 27 weeks D
4c Deliveries under 37 weeks D
4c Low birth weight by ethnicity and deprivation D
4dWRES indicators 1 to 8 for midwives and nurses in maternity and neonatal services -
4d% Of maternity and neonatal staff who attended training about cultural competence in the last two years -
4d% Of maternity and neonatal Serious Incidents relating to patient care with a valid ethnic code -
4d% Of Perinatal Mortality Review Tool cases with a valid ethnic code -

Appendix 4a - Key Groups for Co-production per Place

GroupsEast Sussex opportunitiesWest Sussex opportunitiesBrighton opportunities
Existing maternity service user groups Maternity Voices Partnership; The Motherhood GroupMaternity Voices Partnership; The Motherhood GroupMaternity Voices Partnership; The Motherhood Group
Trusted 1:1 relationship between staff and service users* Continuity of carer teams (when rolled out)Family Nurse Partnerships: Continuity of carer teams (when rolled out)Continuity of carer teams (when rolled out)
Community assets for further outreach - Children and Family Centres, childcare, and support organisations Home Start East Sussex Family Support; Children’s Centres; Health and wellbeing hubs run by FSN charityHome Start West Sussex Family Support; Children and Family Centres; Early Help Teams Home Start Brighton & Hove Family Support, Children’s Centres and Early Years settings; CHOMP (providing food and activities for low-income families)
Community assets for further outreach -BAME community groups Sussex Indian Punjabi Society; Friends, Family and Travellers OrganisationCrawley Ethnic Minority Partnership; Diverse Crawley; Sangam Women's Groups; Crawley Community ActionBangladeshi Women's Group; International Women’s Network; Syrian Community Group; BAME Young People’s Group
Community assets for further outreach - Faith organisations Black and Minority Ethnic Mental Health Spirituality and Faith Forum; Hastings and Rother Interfaith Forum; East Sussex Islamic AssociationInterfaith Networks in Crawley and Horsham Brighton Mosque and Muslim Community Centre; Brighton and Hove Muslim Women’s Group; One Church Brighton
Community assets for further outreach - VCSE orgs Links Project (support for refugees, migrants, and asylum seekers)Sussex Community Development AssociationRefuge
Community assets for further outreach - Support for young people Xtrax Young People’s Centre; Sussex Clubs for Young People; Young People’s Services through East Sussex County CouncilChange Grow Live (therapeutic service) West Sussex YMCA; Sussex Clubs for Young PeopleBAME Young People’s Group; Youth Collective

Appendix 4b - Community Asset Maps per Place

West Sussex

Brighton and Hove

East Sussex

Appendix 5 - Detailed RACI Matrices Showing Roles and Responsibilities

Introduction

The following matrices detail the national improvement opportunities that the LMNS must deliver on in response to NHSEI guidance from September 2021, and the role of relevant organisations and partnerships in achieving them.

The level of involvement, reporting and monitoring describes all levels at which delivery against each improvement opportunity should be reported and monitored on an ongoing basis – System (i.e., LMNS Board), Place (i.e., East Sussex, West Sussex, or Brighton & Hove Executive Steering Group, when established) or Neighbourhood/Organisation (i.e., local organisation Executive Board).

Roles in implementing improvement define responsible, accountable, consulted, and informed organisations and partnerships across the system for implementation of each improvement opportunity, according to the following definitions:

  • Responsible (R): the organisation(s) who complete the task.
  • Accountable (A): the organisation who is ultimately answerable for the activity or decision. This includes “yes” or “no” authority and veto power. Only one accountable organisation can be assigned to an action.
  • Consulted (C): organisation(s) that needs to feedback and contribute to the activity
  • Informed (I): organisation(s) that needs to know of the decision or action.

For simplicity, the matrices group all providers into one category. Providers include acute, mental health, primary care, community, health visiting, and where relevant local authorities and early years providers. It is recognised that the RACI category ascribed to the providers category may not apply to all providers equally.

For simplicity, the matrices group all commissioners into one category. Commissioners include CCGs, ICSs, NHS England, Local Authorities, and others where relevant.

Partnerships listed include Sussex Health and Care Partnership (SHCP), Perinatal Mental Health Network (PMHN), Neonatal Operational Delivery Network (NODN), Maternity Voices Partnerships (MVPs), Voluntary, Community and Social Enterprise organisations (VCSEs), and Local authorities (LA).

Priority 1: Restore NHS services inclusively

Priority 2: Mitigate against digital exclusion

Priority 3: Ensure datasets are complete and timely

Priority 4a: Understanding the population and co-producing interventions

Priority 4b: Action on maternal mortality, morbidity and experience

Priority 4c: Action on perinatal mortality and morbidity

Priority 4d: Support for maternity and neonatal staff

Priority 4e: Enablers

Priority 5: Strengthen leadership and accountability

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