You are here: Home » Reports » Improving Perinatal Equity and Equality in Sussex: 2022-25 Plan
Report Published: 8th December, 2022
Nationally, there are stark inequalities in outcomes, access, and experience of care for maternity and neonatal service user’s and the opportunities and experience of staff from minority backgrounds. NHSE/I guidance (September 2021) sets out five priority areas to address these findings and asked Local Maternity and Neonatal Systems (LMNS) to develop local plans for delivery.
This document sets out the Sussex LMNS response – identifying the key needs of our local communities and service users, and the changes we need to make to our maternity and neonatal services to better meet these over the next 3 years.
Our vision is to deliver equitable health outcomes for all pregnant and birthing people across Sussex, and equality of experience for the maternity and neonatal staff delivering their care.
Over the next 3 years, we will improve equity for pregnant and birthing people from at-risk groups, including BAME groups, those living in the most deprived areas, and those whose young maternal age, and improve the equality of experience for maternity & neonatal staff from BAME groups. We will start with focussing on the largest groups experiencing the greatest inequities and focus on smaller geographic and population groups over time. This will enable us to develop perinatal services where outcomes, access and experience are the same for all, and a working environment where all perinatal staff are treated equally. A summary of this can be found in the plan-on-a-page in Appendix 1.
Through embedding proportionate universalism, collaboration, and co-production in our approach, we will unlock benefits for our population, our people, and our system, including:
Across Sussex LMNS, there are approximately 16,500 births each year – we have a population of 1.7m people, of which 15% – 25% are women aged 16-44. Birth rates have been broadly stable since 2013 and are forecast to remain constant through to 2025, with the picture consistent across the region.
Our services are organised into three Places, aligned to Local Authority boundaries, each with a Maternity Voices Partnership (MVP). Acute services are provided by University Hospitals Sussex NHS Foundation Trust and East Sussex Healthcare NHS Trust within the LMNS, and Surrey and Sussex Healthcare NHS Trust and Maidstone and Tunbridge Wells NHS Trust in the north of the patch. Additionally, Sussex Partnership NHS Foundation Trust provides specialist Perinatal Mental Health services and Sussex Community NHS Foundation Trust provides health visiting services. Local Authority partners provide health visiting and public health, including early years.
We strive to deliver high-quality care for all, but we know we can do better. Key challenges include:
Our plan starts from an in-depth understanding of the communities we serve, their needs and how our services can be adapted to better meet these.
We have focused on a subset of priority groups that experience the greatest inequities and make up a larger proportion of Sussex’s local population. We recognise this is not initially a comprehensive approach and there are several further groups that will need enhanced support (e.g., travellers, asylum seekers and refugees, older birthing people, those living with disabilities and coastal communities). Our continuous quality improvement approach will enable us to become more granular in understanding and tailoring our actions to address the specific needs of these further groups and the intersectionality between them.
Over the next 3 years we will deliver (and go beyond) the national guidance to develop more equitable services for our population:
By the end of FY 2022/23 we will: restore services inclusively (implementing the four COVID-19 actions to narrow disparities in pandemic related outcomes), implement the Long Term Plan perinatal mental health service (to capture more maternity service users), roll-out the Maternity Medicine Network pilot, use WRES data to support maternity and neonatal staff and ensure increased reporting of outcome data by ethnicity and postcode.
By the end of FY 2023/24 we will: implement Continuity of Carer (CoC) for 75% of birthing people from BAME and deprived groups, progress towards ambitious goals for the proportion of women and birthing people on smoke-free pathways, provide access to Maternal Medicine Networks across region, embed perinatal pelvic health services, roll out multidisciplinary cultural competence training at scale and embed data into BAU processes to identify and prioritise those groups with poorer health outcomes.
By the end of FY 2024/25 we will: offer CoC to all pregnant and birthing people as the default model of care, providing to at least 75% of birthing people from BAME groups and deprived areas with CoC as they take up this offer, achieve UNICEF Baby Friendly accreditation for all services, provide expanded perinatal and maternal mental health services (extending the PNMH specialist service to 24 months and including non-birthing parents and families), roll-out use of community hubs, ensure co-production is embedded within BAU and inform ongoing service development using population health management.
To deliver these objectives, Places have developed targeted interventions across six areas.
For this plan to be effective it needs to be adapted and implemented at Place level. Therefore, delivery will be through Place-based Steering Groups with representatives from providers, commissioners, public health, MVPs, voluntary, community and social enterprise (VCSE) organisations and the LMNS. The LMNS will support delivery in three main ways:
Pregnant person and clinical staff looking at website on a tablet.
Our vision is to deliver equity of health outcomes for all pregnant and birthing people across Sussex, and equality of experience for maternity and neonatal staff delivering their care, so pregnant and birthing people in Sussex achieve health outcomes that are as good as the groups with the best health outcomes in our population.
We will achieve this by empowering all birthing people in Sussex to make informed choices about their care – supported by collaborative relationships with healthcare staff, access to care in the community, and services which are co-produced to meet their needs.
Through this work, in future we will not only ask if our services are safe, compassionate, and accessible overall, but if they are equitably safe, compassionate, and accessible for everyone, measuring our progress and success. To do this we will need to:
Our additional aims for where we want to be at the end of each of the three years from 2022 to 2025 are expressed as System-wide goals in Section 3.
Our maternity services transformation will be based on three fundamental principles:
This plan is the delivery mechanism for the perinatal equity aspects of Sussex Health and Care Partnership’s (SHCP) Core20PLUS5 approach, and a key mechanism for meeting the ambitions set out in Sussex 2025: Our vision for a healthier future and the Sussex Strategic Health Inequality Framework. It is a vital step in delivering fairer and more equitable care across Sussex.
Sussex has a population of 1.7 million people, of which 15% – 25% are women aged between 16 – 44 years of age. Birth rates have been broadly stable since 2013 and are forecast to remain constant through to 2025, with the picture consistent across the region.
Sussex LMNS brings together the maternity service providers, perinatal mental health service providers, commissioners for health and public health and local authority colleagues with maternity and neonatal service user representatives, known as Maternity Voices Partnerships (MVPs).
Together the maternity and neonatal service providers – University Hospitals Sussex NHS Foundation Trust (UHSx), East Sussex Healthcare NHS Trust (ESHT), and Surrey and Sussex Healthcare NHS Trust (SASH) – provide care for approximately 16,500 Sussex births each year, delivering maternity services within three acute providers and across seven sites. Maidstone and Tunbridge Wells NHS Trust (MTW) also provide some maternity services in East Sussex. Additionally, Sussex Community NHS Foundation Trust (SCFT) and ESHT provide health visiting services, while Sussex Partnership NHS Foundation Trust (SPFT) provides specialist perinatal mental health services across the system. The Sussex LMNS works collaboratively with the Sussex Mental Health Programme on perinatal mental health and wellbeing.
There are significant pockets of multiple deprivation across Sussex. These are shown in darker purple below, and include areas such as Rother in the east, parts of Hastings, Wealden and Brighton and Hove in the south, and Arun (particularly Littlehampton and Bognor Regis) in the west. In the north, Crawley has the highest number of deprived areas.
Figure 1: Sussex LMNS showing deprivation level. Source: SHAPE atlas
There are three Local Authorities in Sussex – Brighton & Hove City Council, East Sussex County Council and West Sussex County Council – who are responsible for commissioning health visiting, prevention services and a range of other services that impact on the wider social determinants of health and wellbeing.
The perinatal population of Sussex access maternity and neonatal services from providers in three Local Maternity and Neonatal Systems – Sussex, Surrey Heartlands and Kent & Medway LMNS – and two Neonatal Operational Delivery Networks – Hampshire, and Kent, Surrey, Sussex – making it one of the most complex in the country.
We are committed to delivering a safe, high-quality, and personalised maternity journey for all. In our 2019 LMNS Plan, we identified health inequalities and unwarranted variation as a key challenge and have been working to improve and address this.
New PCSP cover
Tasked with producing a new PCSP for Sussex, service users and staff came together to co-produce a booklet. A strategic service user representative led this engagement, listening to a broad range of user views via an online survey and conducting wide staff engagement, understanding their needs and the needs of the people they care for, and encouraging wide PCSP use. Staff included specialist midwives and representatives from perinatal mental health, young persons’ continuity of care, infant feeding support and health visiting. The hard copy produced reflects service users’ and clinicians’ needs, increases confidence in the utility of PCSPs, and has informed the design of a digital version.
Whilst we have made significant progress, we know there are still differences in how birthing people from different populations access and experience maternity and neonatal care and the outcomes associated with this. For Sussex, the key challenges are:
Sussex has one of the largest geographical footprints in the country with a diverse population, which presents challenges to delivering a standardised, high-quality service and reducing inequities.
Whilst our overall Sussex population is predominantly white (93.7%) with large areas of relative affluence, we have significant pockets of need. Our local communities vary substantially in terms of deprivation, rurality, ethnicity, and age distribution – these factors can be associated with significantly worse maternal and foetal outcomes and poor access to care.
We need to reduce these inequalities for our populations – this will require us to work differently in terms of how we use resources, how we assess the impact of the decisions we make and how we look at new ways in which everyone can have equitable access to appropriate services.
Some groups may require more intensive support and additional help to access services – this plan sets out how we will tailor our services to target the needs of our local populations and offer a personalised maternity journey that wraps around the individual and their family.
Nationally, the 2021 MBRRACE-UK and National Child Mortality Database (NCMD) reports show the stark differences in outcomes and experience for birthing people from Black, Asian and Mixed ethnic groups, and those that are socioeconomically deprived. The reports show that while neonatal mortality rates are improving, they aren’t improving equally for women and birthing people of different ethnicities, or women and birthing people from affluent and deprived areas. Also, there is national variation in the quality of care for neonates.
We believe this picture to be consistent locally. Although we do not consistently record our outcomes by ethnicity, age, or deprivation, where data is present it is in line with the national picture. Going forwards, capturing, and reviewing outcomes by cohort will be key to tailoring our maternity and neonatal services and taking a population health approach for our perinatal population Sussex.
Delivering improvements in perinatal and maternal mortality and personalised maternity services will require engagement and outreach to these seldom heard groups, to build trust for effective co-production and understanding of their experience. We will work to co-design services to target the specific needs of these populations, giving all women and birthing people a greater voice in the perinatal services they use and enabling shared decision-making in their care. This collaborative relationship is essential to improving safety and quality in maternity services, including morbidity and mortality.
At ESHT, service users and senior managers across all departments meet every six months to discuss service user feedback (incl. responses from MVP online surveys) and agree actions. This can include setting up working groups on specific issues, with progress monitored at quarterly MVP meetings so that service users can hold services to account.
MVPs have supported the co-production of a business plan for peer support for black and brown pregnant birthing people with maternity and neonatal staff. This led to the commissioning of a peer support programme with The Motherhood Group.
Historically, Sussex has seen a high prevalence of modifiable maternal risk factors, namely maternal smoking – particularly in East Sussex – and – as identified in our 2019 LMNS Plan – obesity rates above national targets.
Maternal smoking is associated with a 47% increase in risk of stillbirth, a 27% increased risk of pre-term birth and an 82% increased risk of a low birthweight baby as well as increased risk of congenital abnormalities of the heart, limbs, and face. Women and birthing people who are overweight or obese have an increased risk of experiencing complications in pregnancy and/or labour such as gestational diabetes, thromboembolism, miscarriage, and death.
We have put in place targeted interventions to address these risk factors and promote healthy behaviours but need to tailor these further to target groups that have disproportionately higher risk. We know:
There is a complex relationship between risk factors and population demographics. For example, while we know smoking rates are higher in deprived groups around Hastings and East Sussex, this high rate is driven mainly due to high maternal smoking rates in teenage and young birthing people. Building on the regional ‘Ready for Pregnancy’ and ‘Ready for Parenthood’ campaigns we will develop targeted, culturally nuanced prevention interventions, using the Making Every Contact Count approach to health promotion.
COVID risk poster co-produced with BAME service users
Working with BAME service users to develop targeted, sensitive communications and pathways
During COVID, Brighton and Sussex University Hospitals NHS Trust proactively reached out to pregnant women and birthing people from BAME backgrounds to co-produce a poster that raised awareness of risks to this group during the pandemic. The poster has been used widely throughout Sussex and received favourably.
The Perinatal Mental Health Network (PMHN) also worked closely with MVPs in producing its new trauma-informed care pathway. MVPs gathered service user feedback, signposted service users to appropriate help and support, and shared information with the PMHN on what would work well in a trauma-informed care approach.
UHSx has a maternity and neonatal team of over 1000 people (807 WTE), and ESHT has a team of 399 (331 WTE) across clinical and non-clinical roles.
The overall ethnicity profile is broadly in line with the surrounding population (85% from a white background at UHSx, 91% at ESHT). A higher portion of medical staff are from BAME backgrounds (54% white background at UHSx, 40% at ESHT), with midwifery and nursing and support staff more likely to be from white backgrounds (91% – 93% white backgrounds at UHSx and ESHT.
We know that staff from a BAME background face disadvantages – this has been shown nationally, and local data supports a similar picture in Sussex. This includes:
Across the LMNS there are multiple initiatives we can build on to reduce inequalities in the workforce. Staff Facebook groups such as the “Make it Happen” group act as an open forum for continuous feedback and discussion, and Equality, Diversity, and Inclusion (EDI) champions across the system build trusted relationships for focussed input into formal processes and structures.
The REAL (Recognition, Equity, Advocacy and Leadership) strategy that was devised by a midwife, who is the Race Equality Lead in UH Sussex, is leading meaningful improvement for BAME staff as well as BAME service users. The midwife and her team of REAL ambassadors and allies support BAME staff, provide educational resources, support communication between senior management and the shop floor, conduct local analysis and deliver office hours, amongst many other activities. This is building trusting relationships with BAME staff and generating an environment where staff feel more able to share their experiences and be involved in designing and delivering improvements.
Our plan starts from an in-depth understanding of the communities we serve, their needs and how our services can be adapted to better meet these. It builds on a detailed understanding of where we are now against the five national priorities – see Appendix 2.
We have defined an initial 3-year plan – setting out the key milestones and system-wide goals to deliver against the five national priority areas. The actions needed to deliver this are grouped into six areas comprised of nationally mandated interventions, best practice guidance and local actions. Each Place has co-designed a targeted local plan, bringing together providers, commissioners, service users, the LMNS, public health and local authorities.
To have the largest impact we are starting with the largest population groups (those from a BAME background, those from the 20% most deprived areas, young birthing people), whilst we further develop our granular understanding of local populations’ needs at district/ neighbourhood levels.
Our approach builds on the work to date in three keyways:
We recognise this approach is not comprehensive, and there are several groups that will need enhanced support and targeted services to ensure equity of outcomes. This includes those living with disabilities, those from refugee and migrant backgrounds, those from the Traveller community and those with other protected characteristics (e.g., religion, sexual orientation, marital status).
We commit to continuing this work. By further developing our understanding of local communities we will deep dive into the needs of these groups, engaging service users to co-produce and further tailor our actions to meet these. We will take a continuous improvement approach to ensure our services are equitable and designed around the needs of the people and families we serve. Further detail of the metrics to be measured can be found in Appendix 3.
ESHT has established clear routes for service users to initiate additional discussion and improvement. MVPs are able to directly refer service users who had a negative experience to the Head of Midwifery and Director of Midwifery to raise and address the issue. This can lead to general reflection on practice and improvement initiatives, and it can also lead to targeted discussions with relevant teams and individuals. It also enables service users who have had a negative experience to be signposted to appropriate support and debrief services.
We have an ambitious plan to reduce perinatal inequalities across Sussex over the next 3 years. As an LMNS we have a strong foundation in system working and collaboration, which will enable us to go further and faster than the national priorities.
The table below sets out our system-wide goals for delivering against all five national priorities over the next three years. Goals that go beyond the September 2021 NHSEI guidance are marked with a green circle.
To deliver our vision and the system-wide goals set out above, we are acting across six areas. These action areas group the wide range of interventions sitting underneath the national priorities. The six areas and illustrative summaries of relevant interventions are given below.
During 2020/21, there were 3,348 maternity bookings and 2,853 births that took place at ESHT. In terms of reproductive-aged women more broadly, in 2020 there were an estimated 81,607 women aged between 16 and 44 living in East Sussex, comprising 14.6% of the overall county population. Supporting this estimate, 15.9% of those registered with East Sussex GP practices are women aged 15-44 years old.
A relatively small proportion (9%) of birthing people at ESHT came from BAME backgrounds in 2020-21. These service users are clustered in Eastbourne (37% of service user residents), with other significant pockets in St Leonards (19%), Hastings (15%) and Bexhill (13%). The largest identifiable ethnic group was Asian/Asian British – 4% of all perinatal service users – with the majority living in Eastbourne. Over half of all (230) interpretation requests maternity services in 2019-20 were for Arabic – potentially indicating another significant ethnic group. One of the most striking perinatal inequalities for the BAME group across East Sussex relates to a disproportionate number of caesarean sections: 41% of births to BAME birthing people at ESHT were by caesarean section in 2020-21, compared to an approximate 25% national average across all demographic groups.
The most deprived population groups in East Sussex are clustered around Hastings, which has seven wards within the most deprived decile nationally. In addition, 40% of GP patients in Hastings & St Leonards PCN live within the most deprived quintile nationally. The proportion of booking appointments at ESHT to women and birthing people living in the most deprived decile was 13.7% in 2020-21 – slightly higher than national average (12.7%) and considerably higher than the Sussex average (5.7%). Considering other disadvantaged groups – who can intersect with groups living deprivation – 10% of those birthing at ESHT were recorded as having complex social factors in March 2021. In relation to young birthing people specifically, between August 2020 & July 2021 an average of 10.4% of women and birthing people on the specialist perinatal mental health services caseload within East Sussex CCG were aged between 16 and 20. This is far higher than the overall proportion of service users this age, and points to the discrepancy in outcomes for this group.
Most maternity and neonatal services in East Sussex are provided by ESHT – an integrated acute and community provider. ESHT operates two maternity sites – at Hastings Conquest Hospital and Eastbourne District General Hospital. This Place-based plan is focused on ESHT’s role as lead provider. Maidstone and Tunbridge Wells NHS Trust (MTW) also provide some maternity services in East Sussex. Whilst MTW comes under the Kent and Medway LMNS, Sussex LMNS works collaboratively with MTW on reporting and monitoring. Sussex Partnership NHS Foundation Trust provides perinatal mental health services in the area.
In relation to workforce, WRES data for 2020 indicates that 16% of the ESHT maternity workforce identified as BAME – this is significantly higher than approximately 6% of the overall population. An ESHT staff survey in 2019/2020 – with results broken down for the gynaecology and obstetrics department – found that only 76% of BAME employees believed that the Trust provides equal opportunities for career progression or promotion, compared to 88% of non-BAME employees. Combined with similarly disproportionate responses for other WRES indicators – such as experiences of harassment – these results characterise a consistently poorer workplace experience for BAME employees compared to their non-BAME counterparts.
To focus on interventions which are most likely to have the biggest impact on reducing perinatal health inequalities, the East Sussex perinatal equity steering group has identified three priority demographic groups for targeted action – based on the extent of health inequalities they experience, the relative size of the group compared to other groups, and national priorities.
This identification accounts for why these three groups were the focus of the birthing population context summarised in the section above. The table below sets out the needs of and issues faced by these priority groups, which in turn influence the locally tailored actions set out in this plan.
Following a strategic review of outcomes at the end of year one, this plan will consider additional priority groups based on other protected characteristics, such as disability.
To meet the needs of these priority groups, the East Sussex plan is focused on a targeted set of priority improvements – set out in the table below. These include both core interventions in line with national guidance, and additional interventions given the characteristics of the local population and the operating context.
These priority action areas will be phased over three years in line with the LMNS system goals for 2022-25. The priority improvements, sequencing and key milestones are shown in the charts below
Most birthing people in West Sussex come from white backgrounds, as evidenced in Trust data from November 2020 to October 2021. The proportion of birthing people from BAME backgrounds – predominantly from Asian groups – was low (4.4%) at UHSx (West), but the figure increased (12%) at UHSx (East) and was much higher (24%) at SASH. BAME service users are clustered in Crawley – with significant diversity – together with significant pockets in Mid-Sussex, Worthing, and Arun. It is notable that West Sussex has a young BAME population compared to the general population, with the largest proportion of the group being working age. One of the most striking perinatal inequalities for the BAME group across West Sussex relates to stillbirths: 33% of stillbirths at SASH (two out of six) were to Asian or Asian British birthing people in the 12 months prior to November 2021.
Based on figures of non-English languages spoken in West Sussex and by service users at UHSx in 2019-20, non-British white birthing people constitute a significant group. Polish and Romanian accounted for over half of non-English languages spoken by service users, with a particular concentration of Eastern European groups in Bognor.
The most deprived population groups in West Sussex are clustered around Crawley and in Arun – particularly Littlehampton and Bognor Regis – where three wards fall within the most deprived decile nationally and a further seven in the most deprived quintile. A fifth of the births at University Hospitals Sussex West in the 12 months prior to November 2021 were to birthing people living in deprivation (based on postcode), and the same proportion of birthing people experienced complex social issues.
Young birthing people in West Sussex – who can intersect with those living in deprivation – experience specific vulnerabilities. Between November 2020 & November 2021, 45% of young parent clients supported by the West Sussex Family Nurse Partnership reported existing mental health issues on recruitment to the programme. In addition, approximately 40% of young parent clients supported by this service disclose current intimate partner violence.
Two acute trusts provide maternity and neonatal services in West Sussex. University Hospitals Sussex NHS Foundation Trust (UHSx) caters to service users in the west of the region at its sites in Chichester and Worthing, and to service users in the east of the region at its Haywards Heath site. Surrey and Sussex Healthcare NHS Trust (SaSH) caters to service users in the north of the region. SaSH is officially part of the Surrey Heartlands LMNS but has close relationships with Sussex LMNS. This includes a Sussex-focused co-chair of its Maternity Voice Partnership. Sussex Community NHS Foundation Trust provides maternity-related community-based services in the area, whilst Sussex Partnership NHS Foundation Trust provides perinatal mental health services.
Whilst it has not yet been possible to break down WRES data for maternity and neonatal staff specifically, there is no reason to believe that the experiences of these staff are different to those of staff overall. Trust-wide 2020 summary data for Western Sussex Hospitals NHS Foundation Trust – before it merged to become UHSx – showed that 16% of BAME employees had experienced workplace discrimination by colleagues, compared to only 6% of non-BAME employees. Combined with disproportionate responses on other WRES indicators – such as believing that the Trust provides equal opportunities for career progression or promotion – these results characterise a consistently poorer workplace experience for BAME employees compared to their non-BAME counterparts.
To focus on interventions which are most likely to have the biggest impact on reducing perinatal health inequalities, the West Sussex perinatal equity steering group has identified five priority demographic groups for targeted action – based on the extent of health inequalities they experience, the relative size of the group compared to other groups, and national priorities.
Following a strategic review of outcomes at the end of year one, this plan will consider additional priority groups based on other protected characteristics and local demographics. In West Sussex, we are likely to consider refugees and asylum-seekers, those from the Traveller community, and birthing people with pre-existing mental health needs. Developing our understanding of local needs through ensuring diverse representation in co-production will be central to this.
To meet the needs of these priority groups, the West Sussex plan is focused on a targeted set of priority improvements – set out in the table below. These include both core interventions in line with national guidance, and additional interventions given the characteristics of the local population and the operating context.
These priority action areas will be phased over three years in line with the LMNS system goals for 2022-25. The priority improvements, sequencing and key milestones are shown in the charts below.
West Sussex Based Plans
The proportion of birthing people coming from BAME backgrounds in Brighton & Hove is the highest across Sussex. Out of the total number of deliveries in 2020-21, 11.8% were to BAME birthing people (4.8% Asian, 3.5% Mixed background, 1.7% Black background). In Brighton & Hove, BAME groups comprise a larger proportion of the 20-44 age group, with a notable peak of Black/Black British residents aged 20-24 years. BAME service users in 2020/21 were clustered around Central Hove (38.7% of BAME service users) and Central Brighton (20.7%).
In terms of inequalities experienced by BAME birthing people, the rate of emergency caesarean sections in 2020-21 at UHSx East was between 38% and 46% for those from varied Black backgrounds, compared to 18% for those from a White background. UHSx East data for 2020-21 shows that Black Caribbean birthing people specifically experienced a disproportionately higher rate (64%) of births leadings to post-partum haemorrhage of more than 500ml, compared to a national average of 30%.
A fifth of the Brighton and Hove population live within the most deprived quintile nationally, clustered around the areas of Whitehawk, Moulsecoomb and Hollingbury. In 2021, 12.5% of households in Brighton & Hove contained a working age adult claiming housing benefits, compared to 10.2% nationally. As deprivation increases, the proportion of birthing people experiencing complex social factors also increases – data from 2017-18 indicates that 7.6% of birthing people in Brighton & Hove experienced such factors. The number of families with dependent children who are single-parent households is higher than the national average in Brighton. Recent anecdotal evidence from professionals in the field also indicates that the number of birthing people with a previous history of mental health issues is increasing – with the increasing likelihood of birthing complications that this entails.
University Hospitals Sussex NHS Foundation Trust (UHSx) provides maternity and neonatal services for service users in the area, from its Royal County Sussex site in Brighton and at Haywards Heath. Sussex Community NHS Foundation Trust provides maternity-related community-based services in the area, whilst Sussex Partnership NHS Foundation Trust provides perinatal mental health services.
Whilst it has not yet been possible to break down WRES data for maternity and neonatal staff specifically, there is no reason to believe that the experiences of these staff are different to those of staff overall. Trust-wide 2020 summary data for Brighton & Sussex University Hospitals NHS Foundation Trust – before it merged to become UHSx – showed that 16% of BAME employees had experienced workplace discrimination by colleagues, compared to only 7% of non-BAME employees. Combined with disproportionate responses on other WRES indicators – such as believing that the Trust provides equal opportunities for career progression or promotion – these results characterise a consistently poorer workplace experience for BAME employees compared to their non-BAME counterparts.
To focus on interventions which are most likely to have the biggest impact on reducing perinatal health inequalities, the Brighton & Hove perinatal equity steering group has identified five priority demographic groups for targeted action – based on the extent of health inequalities they experience, the relative size of the group compared to other groups, and national priorities.
Following a strategic review of outcomes at the end of year one, this plan will consider additional priority groups based on other protected characteristics and local demographics. In Brighton & Hove, we are likely to consider refugees and asylum-seekers (both newly settled and newly arrived). Developing our understanding of local needs through ensuring diverse representation in co-production will be central to this.
To meet the needs of these priority groups, the Brighton & Hove plan is focused on a targeted set of priority improvements – set out in the table below. These include both core interventions in line with national guidance, and additional interventions given the characteristics of the local population and the operating context.
Brighton & Hove Based Plans
MVP
Our Sussex LMNS is crucial to delivering this plan – fulfilling three key roles for the ICS (as set out in our 2019 Local Maternity System Plan):
To fulfil all three roles, we will operate both as an “LMNS at Place” and “LMNS at system”.
For this plan to be effective it needs to be adapted and implemented at a Place level, allowing it to be fully owned and matched to local need. We will support delivery through Place-based perinatal equity steering groups – these groups have been mobilised during planning and will now take a lead role in overseeing and delivering our plan.
The Place-based groups will report into both the LMNS Board and Place-based Executive Leadership Groups, with subsequent upwards reporting through to the SHCP Executive Board.
Governance via the Place-based Executive Leadership Groups will provide the ICS with oversight and assurance of local plans, as well as driving wide-ranging collaboration at local level to support maternity and neonatal service providers. For example, this could entail involving local Equity and Equality Teams, Teenage Pregnancy Leads or One-Stop Drug and Alcohol services.
At the same time, we will assure overall progress against this programme on behalf of the ICS. In addition, some areas of work will benefit from Sussex-wide collaboration at a system level; to support this, the LMNS Board will informally report to and share information with both the Turning the Tide Oversight Board and Population Health and Prevention Board.
Infromal Reporting and Information Sharing
Co-production is key to improving our services in the way that best meets the needs of our local population. Sussex has a strong track record of co-production, evidenced by successful examples highlighted throughout this plan. We are committed to involving women and birthing people, their families and support, and staff, in reviewing and refining this plan over the next three years.
To co-produce this plan, we facilitated weekly Place-based working sessions with:
Tactically, we will build on this work in the short-term by:
Strategically, we are committed to supporting partners systematically embed co-production into business-as-usual processes. In practice, this means incorporating the following ingredients LMNS-wide – with strong involvement from MVPs:
Right purpose
Right positioning
Right participation
Right processes
At a Place and neighbourhood level, co-production approaches will be tailored to the local context – supported by these LMNS-wide ingredients. For example, the BAME peer support programme in Brighton run by The Motherhood Group has been working with BAME service users on perinatal mental health and wellbeing to co-produce and inform ongoing support. As another example, UHSx co-produced with Arabic-speaking service users a series of antenatal classes delivered in Arabic.
In Brighton, linking in maternity and neonatal services with local voluntary, community and social enterprise organisations has enabled identifying and approaching appropriate individuals to set up lived experience service user groups. These are valuable forums for targeting co-production and engagement.
Places’ core co-production activities are described in the Place-based plans set out earlier in this document. Places will supplement these core activities with specific meetings and dates as they undertake more detailed implementation planning. Activities include, but are not limited to:
Appendix 4a sets out the key groups in each Place who can support co-production initiatives. Appendix 4b provides a fuller map of the community assets in each Place.
Implementation of this plan will occur at Place level, driven forward by the Place-based perinatal equity steering groups. We will support these groups to effect change on the ground and maintain a focus on delivery at system level. The implementation framework set out below will support the groups to do this. The framework sets out key questions related to what it will take to implement this plan effectively. It will also support a cycle of planning, doing and evaluation through the life of this plan to ensure that the approach set out in the plan become business as usual.
We have defined the roles and responsibilities of system partners in delivering this plan, including who will be accountable (A), responsible (R), consulted (C) and informed (I) for delivery of each improvement opportunity sitting underneath the national priorities. A summary is provided in the table below – more detail can be found in Appendix 5.
The Programme Director of the LMNS is the senior responsible owner of this plan for the LMNS. The ICS board-level sponsors of the plan are the LMNS CEO Executive Sponsor and the ICS Chief Nursing Officer who sits as the LMNS Executive Chair. The ICS Executive Manager Director for West Sussex provides ongoing executive oversight of the plan and support to the LMNS Programme Director. The ICS has agreed an NHSE/I funded LMNS core team who will support these senior personnel with their sponsorship and oversight responsibilities.
The Chief Nursing Officers of UHSx and ESHT are the provider board-level safety champions overseeing this plan, leading on maternity and neonatal disparity. They also lead on perinatal health inequalities for their organisations. The Directors of Public Health, CCG Chief Medical Officer and ICS Clinical Director lead on Population Health Management, Prevention and Health Inequalities across the ICS. They are supported by the Programme Director for Population Health Management and Prevention and the core programme team who support these senior personnel with their sponsorship and oversight responsibilities.
Delivering our vision for maternity services will require ongoing work and improvement – we will continually review our performance as a system, identifying key gaps, unmet needs, and opportunities to improve the quality and experience of our services.
This will need: 1) relationships and collaboration between partners, 2) granular up-to-date performance data, and 3) system-level structures to review and identify target improvement opportunities.
The LMNS Board is our primary mechanism to drive transformation, integrating our work on health inequalities with wider improvements in perinatal safety and mortality, maternal choice, and personalisation. This forum brings together clinicians from across partner organisations to disseminate and implement learnings across the system, including corrective actions from adverse events, new evidence and best practice, and innovative new models of care. These forums will allow us to engage the passion and drive of individuals within local teams, engaging all members in quality improvement and supporting the development of grassroots initiatives.
Multi-professional learning and discussion helps break down boundaries between individuals and organisations and instil an academic rigour in quality improvement projects. This will help service improvements deliver the greatest possible impact and value, whatever their scale.
The LMNS Quality and Safety Forum sits alongside the Board. The Forum will be responsible for reviewing performance data and identifying gaps and priorities – this will feed into the LMNS Board to design and implement mechanisms to address. The Maternity dashboard will develop to include reporting by ethnicity and deprivation for key outcome metrics.
The Quality and Safety Forum will regularly monitor trends in the data to ascertain where changes might be needed in the system approach (e.g., new service user needs leading to new requirements for audit or co-production) and will conduct, at minimum, an annual review to incorporate lessons from national and regional best practice and analysis, including the MBRRACE report. We will facilitate lesson-sharing and spreading of clinical best practices across the LMNS, as per the Perinatal Quality Surveillance Model, to support information flow and improvement across Sussex.
Strong, multi-professional clinical leadership to translate system-level planning into action, within individual organisations. The LMNS has existing membership from the provider Heads of Midwifery and nominated LMNS Obstetric and Neonatal consultant leads. As our role evolves to take on more of an assurance function alongside transformation, we will review our clinical leadership requirements and support for individuals to ensure we have the right seniority and level of clinical engagement needed.
We will champion ongoing high-quality data collection to understand how well the plan is addressing the needs of local populations. The key tool for monitoring outcomes will be the maternity services dashboard, with priority metrics broken down by key demographic groups. See Appendix 2 for a detailed breakdown of where national indicators are already in place, and where these will be broken down by key demographic groups.
Whilst the LMNS will coordinate monitoring of outcomes and progress against the plan, responsibility for this sits at all levels within the ICS:
To coordinate monitoring of outcomes and progress against this plan we will support the following new information flows to be put in place:
We will proactively manage key interdependencies with cross-cutting enabler ICS workstreams:
Given the close ties between the vision for this plan and the ICS’s overall Population Health Management, Prevention, and Inequalities programme, we will build on existing links with this programme team and put in place arrangements for regular information sharing – for example, via the existing Place-based weekly meetings that oversee work on addressing health inequalities. When the ICS Population Health Strategy is published, we will conduct a review to ensure that this plan is aligned with the strategy.
There are also close ties between the staff equality elements of this plan and the work of the Turning the Tide Transformation Oversight Board, which has oversight of the BAME population and workforce inequalities. A representative from Turning the Tide was involved in the working groups to develop this plan so far, as well as being involved in additional focussed discussion on the race equality elements. This relationship will continue to develop through delivery of the plan to share best practice. We will proactively engage with the Turning the Tide board to manage interdependencies and report on progress as appropriate.
This plan does not entail committing to increased levels of spending. The key difference will be in how we use the existing money available to us. Our commissioning will be increasingly needs-led and focused on priority target demographics – until this becomes business-as-usual. In line with the principle of proportionate universalism, we will target spending in a way that meets the needs of our most disadvantaged groups whilst still providing service improvements for all. Where any additional revenue or capital investment is needed, system partners will develop specific business cases as per normal ICS processes. Where additional transformation money from national sources is made available, we will ensure that is targeted and spent as intended.
We will map out the extent to which existing programme resourcing, at both system and Place level, covers the capacity and capabilities required to deliver the actions set out in this plan. Following collaboration with Places on this exercise, we will be well-placed to determine if there are any resourcing gaps and how best to address these.
In addition, system partners are committed to this work and will provide resourcing on a business-as-usual basis as part of their involvement – for example, analytical support from the ICS Population Health & Prevention Team, and involvement of local authority public health and commissioning teams in the Place-based perinatal equity steering groups.
We will engage and continue to develop this plan with a wide range of stakeholders, as set out in the table below.
Immediate next steps for starting to deliver this plan are as follows:
The table below provides an overview of the LMNS’ progress against the national priority interventions in each Place, from the perspectives of the LMNS and place-based commissioners.
The following table shows where data for the national indicators is currently available, and where these indicators will be broken down further by ethnicity, deprivation, and age. These metrics will be regularly reviewed via the maternity services dashboard. A few other metrics are also in development. This includes:
Data currently available
● = Yes ○ = No ◑ = In some places
Metric to be made available broken down by ethnicity, deprivation, and age
✓ = In line with national guidance D = To be agreed locally – = Not applicable
The following matrices detail the national improvement opportunities that the LMNS must deliver on in response to NHSEI guidance from September 2021, and the role of relevant organisations and partnerships in achieving them.
The level of involvement, reporting and monitoring describes all levels at which delivery against each improvement opportunity should be reported and monitored on an ongoing basis – System (i.e., LMNS Board), Place (i.e., East Sussex, West Sussex, or Brighton & Hove Executive Steering Group, when established) or Neighbourhood/Organisation (i.e., local organisation Executive Board).
Roles in implementing improvement define responsible, accountable, consulted, and informed organisations and partnerships across the system for implementation of each improvement opportunity, according to the following definitions:
For simplicity, the matrices group all providers into one category. Providers include acute, mental health, primary care, community, health visiting, and where relevant local authorities and early years providers. It is recognised that the RACI category ascribed to the providers category may not apply to all providers equally.
For simplicity, the matrices group all commissioners into one category. Commissioners include CCGs, ICSs, NHS England, Local Authorities, and others where relevant.
Partnerships listed include Sussex Health and Care Partnership (SHCP), Perinatal Mental Health Network (PMHN), Neonatal Operational Delivery Network (NODN), Maternity Voices Partnerships (MVPs), Voluntary, Community and Social Enterprise organisations (VCSEs), and Local authorities (LA).
Priority 1: Restore NHS services inclusively
Priority 2: Mitigate against digital exclusion
Priority 3: Ensure datasets are complete and timely
Priority 4a: Understanding the population and co-producing interventions
Priority 4b: Action on maternal mortality, morbidity and experience
Priority 4c: Action on perinatal mortality and morbidity
Priority 4d: Support for maternity and neonatal staff
Priority 4e: Enablers
Priority 5: Strengthen leadership and accountability
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